Jewish Crohn's & Colitis Support Group 'Education Event'

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  • #596778
    JCCSG
    Member

    *What are the Symptoms?

    *How is it Diagnosed?

    *What are the complications?

    *How is it treated?

    *And more…

    Top doctors will address the event, followed by a well renowned highly respected Ruv Shlit”a who will enhance this event

    The Event will be held on Tuesday, Parshas Bechikoisei, May 17, 2011 @ the ParCare Health & Medical Center, 445 Park Ave. (Between Kent Ave & Franklin Ave), Brooklyn NY 11205 @ 8:30pm

    For more information, to discuss, give opinions, ask questions or to offer help you can contact the “Jewish Crohn’s & Colitis Support Group” @ 347-450-0274 or email [email protected] you can stay anonymous. you can visit us @ JCCSG.blogspot.com

    #1137345
    JCCSG
    Member

    1st I gotta say that I never knew how powerful the CR on YWN is, since I posted this threads lot of people contacted us. So 1st I would like to thanks the YWN staff for making me the opportunity to spread it here.

    Thanks again.

    #1137346
    JCCSG
    Member

    1st speker:

    Assistant Professor of Clinical Medicine

    Division of Digestive and Liver Diseases

    College of Physicians and Surgeons

    Columbia University

    Attending Gastroenterologist at St. Luke’s-Roosevelt, Beth Israel Medical Centers, and North-Shore-LIJ Lenox Hill Hospital

    Member, Medical Advisory Board, Crohns and Colitis Foundation of America (CCFA), NY Region

    Subject: “Crohn’s & Colitis, What is it? And how is it treated?”

    #1137347
    JCCSG
    Member

    U/D:

    2nd Speaker:

    Mr. Eliezer Gruber, CN

    Educator, researcher and founder/developer of the Nutri-Supreme Research line of supplements

    Lectures widely on the role of nutrition in achieving and maintaining optimal health.

    #1137348
    JCCSG
    Member

    ???? ??????:

    ???? ????? ????? ?????

    ??? ????? ???????, ?? ???? ???????

    ??? ??? ???? ?????? ????”?

    ~

    A wonderful Chizuk Drusha by the Guest Speaker:

    Rabbi Berl Tauber Shlit”a

    Famous Mashpia from Monsey NY

    #1137349
    JCCSG
    Member

    It is TODAY!!!

    I gotta say again that I never knew how powerful the CR on YWN is, since I posted this threads lot of people contacted us. So 1st I would like to thanks the YWN staff for making me the opportunity to spread it here.

    Please forward this info to whoever you know.

    #1137350
    csilver1516
    Member

    I am not in the NY area, but I would like to hear what the speakers say. Is this going to be recorded?

    #1137351
    JCCSG
    Member

    Was a Smashing success! A full house! Jammed packed!

    #1137352
    knowsitall
    Member

    Hi! I am suffering from stomach burns and I was wondering if I may have crones. Is there a single test that detects crones?

    Thanks in advance

    #1137353
    tzippi
    Member

    Pity I just found out about this to miss spreading the word. Was there discussion about SCD?

    And to knowsitall: talk to your doctor. Maybe scoping’s in order.

    #1137354
    2qwerty
    Participant

    If you feel burning in the stomach its most probably not Crohn’s but you should still see a gastroenterologist to figure out what it is.

    From what i know there is no 1 definite test to figure out if someone has crohns or not.

    #1137355
    JCCSG
    Member

    #1137356
    JCCSG
    Member

    Finally, the CD’s of our first “Jewish Crohn’s & Colitis Support Group Education Event” are available!

    *In Williamsburg: (starting tonight)

    What-A-Bargain

    102 Lee Ave.

    (Between Williamsburg St. East & Hooper St.)

    Brooklyn NY 11211

    What-A-Bargain

    739 Bedford Ave.

    (Between Flushing Ave. & Park Ave.)

    Brooklyn NY 11205

    ~

    *In Boro Park: (already there)

    Nutri-Supreme Research

    4315 14th Ave.

    (Between 43rd & 44th St.)

    Brooklyn NY 11219

    ~

    *Other Areas:

    Contact us @ 347-450-0274 or send us an email to [email protected] and will try to work it out.

    ~

    *Price: $10 (just to cover the expenses!)

    After listening to it, if you have any comments feel free to contact us anytime.

    Also we would like to ask you to please spread the word about the CD’s (we don’t have everyone on our mailing list).

    Hatzlucha!

    P.s. We have a exciting news announcement coming soon, stay tuned!

    #1137357
    JCCSG
    Member

    We added two new locations where you can get the CD’s of the event.

    *In Kiryas Yoel:

    Weinberger

    7 Siget Ct. #101

    Monroe NY 10950

    845-783-7644

    ~

    *In Monsey:

    Fabric Place

    42 Main St.

    Monsey NY 10952

    ~

    *Other Areas:

    Contact us @ 347-450-0274 or send us an email to [email protected] and will try to work it out.

    ~

    *Price: $10 (just to cover the expenses!)

    Again we’re asking you that after listening to it, if you have any comments please share with us

    And also we would like to ask you again to please spread the word about the CD’s (we don’t have everyone on our mailing list).

    #1137358
    JCCSG
    Member

    Hi,

    To all outside of Williamsburg, Boro Park, Kiryas Yoel Monroe & Monsey and they are in need of our first “Jewish Crohn’s & Colitis Support Group Education Event” CD’s, please reply with your address & will try to ship it out in the upcoming week.

    Please note, we’ll not be able to take Credit Cards, therefore you will need to send us a Check with the total cost of the CD’s ($10) plus shipping.

    In the meantime we’re reminding you that you can get our CD’s at the following locations:

    *In Williamsburg:

    What-A-Bargain

    102 Lee Ave.

    (Between Williamsburg St. East & Hooper St.)

    Brooklyn NY 11211

    What-A-Bargain

    739 Bedford Ave.

    (Between Flushing Ave. & Park Ave.)

    Brooklyn NY 11205

    *In Boro Park:

    Nutri-Supreme Research

    4315 14th Ave.

    (Between 43rd & 44th St.)

    Brooklyn NY 11219

    *In Kiryas Yoel, Monroe:

    Weinberger

    7 Siget Ct. #101

    Monroe NY 10950

    845-783-7644

    *In Monsey:

    Fabric Place

    42 Main St.

    Monsey NY 10950

    ~

    *Price: $10 (just to cover the expenses!)

    Again we’re asking you that after listening to it, if you have any comments please share with us.

    And also we would like to ask you again & again to please spread the word about the CD’s (we don’t have everyone on our mailing list).

    Have a great Summer!

    #1137359
    JCCSG
    Member

    I did it already a few times, but… i have to do it ince more! I gotta say again that I never knew how powerful the CR on YWN is, a lot of people contacted us regarding the CD’s saying they saw it on YWN (thats besides the people who were looking for some help or tips & got to us thru YWN/CR). So I would like to thank again the YWN staff for making us the opportunity to spread it here.

    Hatzlucha I’Brucha!

    #1137360
    JCCSG
    Member

    Working already on the next event! After our first one was attended by over 200 people!

    If you have any ideas, or opinions please feel free to share with us.

    #1137361
    yichusdik
    Participant
    #1137362
    JCCSG
    Member

    Burech HaShem we are finally here again!

    We are happy to announce the great news that there will be Iy”h another Education & Support event arranged by the “Jewish Crohn’s & Colitis Support Group”.

    The event will take place on Monday Parshes Toldos, November 21, in Williamsburg, Brooklyn NY.

    A top Gastroenterologist will attend and speak, followed by a well known highly respected Ruv Shlita.

    More details will follow Iy”h!

    Reserve the night!

    Also we would like to ask you to please spread the word about it (you probably know some people who are not on our mailing list nor they read this CR)

    For comments and suggestions (or to help us) feel free to contact us anytime by email or phone.

    #1137364
    JCCSG
    Member

    As we announced two weeks ago we were working on another “Education & Support Event” arranged by the “Jewish Crohn’s & Colitis Support Group”.

    Here we are with some details:

    The event will take place on Monday Parshes Toldos, November 21, at “The Continental” 75 Rutledge St. Williamsburg, Brooklyn NY 11211.

    more deatails to follow.

    #1137365
    bh18
    Participant

    hello, jccsg.

    my 4 year old son has hirschsprungs disease and i am wondering if my coming to the event would help me to know what i can and cant include in his diet, and other info. i know hirschsprungs is not crohns but he currently has a permanent ileostomy and i need all the info and support i can get. thank you

    #1137366
    JCCSG
    Member

    bh18,

    Maybe you can explain me better what the issue is I will be able to discuss it with a doctor today.

    #1137367
    JCCSG
    Member

    ? ????? ???????????????? ????? ????? ????

    ??? ????? ???????, ?? ???? ???????

    ??? ?????? ???????????? ????”?

    ?? ?????”? ???? ?????? ?’???? ????

    #1137368
    JCCSG
    Member

    I see i forgot to post the timing;

    It’ll start at 8:00pm Sharp!

    #1137369
    JCCSG
    Member

    Dr. George will talk about .“How to treat IBD rationally”. he will cover the medical AND the diet field.

    Followed by a Question & Answer forum! You can call us 718-63-JCCSG (718-635-2274) or email us @ [email protected] with your questions. And will try to take some questions live as well.

    Harav Eisneberger Shlita will talk in Yiddish in the subject of .“You have Crohn’s, Crohn’s doesn’t have you…”.

    #1137370
    JCCSG
    Member

    We would like to inform you that due to unforeseen schedule change, Harav Eisenberger Shlita will not be able to attend and speak on Monday. (Harav Eisenberger will Iy”h be enhancing one of our next events).

    However, with utmost gratitude to Hashem we have accomplished the prominent world renowned speaker Harav Ezriel Tauber Shlita to take his place.

    Your presence will greatly enhance the event. Come and be inspired. and please try to be on time so we should be able to start and end on time.

    #1137371
    JCCSG
    Member

    WOW! its was a major success with over 300 people participated.

    CD’s and DVD’s will be sold in the future, anticipate further details. if you are also in need of the first event, please Respond via email.

    We would like to ask you again, advertising is costing us a fortune, so if you know of any Crohn’s patient, let them know about us, he should be able to be on our mailing list.

    #1137372
    JCCSG
    Member

    We are proud to announce about our Third JCCSG Education & Support Event!

    This event will be in conjunction with Bikur Choilim of Kiryas Joel. It will be held in Monroe NY, on February the 16th.

    Please reserve the date. & Spread the word!

    Details will follow

    #1137373
    JCCSG
    Member

    Hi,

    In accordance to our previous confirmation on behalf of our upcoming “Crohn’s & Colitis Education & Support Event”, we are pleased to fill you in with the details.

    We partnered this convention together with the well-known Bikur Choilem of Kiryas Joel, and will be held in Kiryas Yoel, at “The Terrace On Forest”, (Shopping Center Hall), 51 Forest Rd., 2nd Floor, Monroe NY 10950. Thursday Parshas Mishputim, February 16, 2012.

    Due to our overwhelming positive responses, Dr. James George, MD, PH, Gastroenterology, Internal Medicine, Mount Sinai Hospital, (of the well known Dr. Kornbluth, Dr. George, Dr. Legnani office) will enhance our evening once again. His electrifying and informative words truly left the audience mesmerized and injected with vast knowledge in this field.

    Followed by a Question & Answer forum! You can call us or email us with your questions. And will try to take some questions live as well. all questions will Iy”h be answered.

    Followed by a ‘Yiddish’ Spiritual speech of the highly respected Harav HaTzadik Reb Yakov Yosef Twersky Shlita, son of the Skver’a Rabbe Shlita.

    ???? ????? ????? ?????:

    ???”? ???????, ?? ???? ???????

    ??? ???? ???? ???????? ????”?

    ?? ?”? ????”? ?’??????? ????”?

    Also we would like to ask you to please spread the word about it (you probably know some people who are not on our mailing list)

    For comments and suggestions feel free to contact us anytime by phone or email.

    We are awaiting your presence.

    #1137374
    JCCSG
    Member

    A Giten,

    The Program will start at 8:00pm SHARP! Please be so kind and stick to this time thereby encouraging everything to run timely!

    Since we got lots of phone calls and emails of people with these questions due to some unclear advertisements, we would like to ask you to please spread this info to all Patients & their families you know.

    Reminder: You can still email us [email protected] or call us 718-63-JCCSG (718-635-2274) with your questions for Dr. George.

    We are cordially awaiting your presence!

    #1137375
    Right Path
    Member

    JCCSG whats so hard to understand? You dont seem knowledgeable in this area. There is more to Chrons then diets.

    bh18 said that their son has a Ostomy and would like to know more about how to deal with it.

    bh18 is right on target as many who have Chrons get a temporary iliostomy. Some people with Chrons get their temporary iliostomy after a resection surgery.

    #1137376
    bh18
    Participant

    Thank you, right path! I’m glad I’m not forgotten about. I could use even more guidance now than before Ostomy was placed. My son is not eating over yom tov since he eats mostly white flour products and matzah is dangerous for him. If anyone has ideas please,help us. My son keeps saying how hungry he is and I resorted to giving him American cheese, the least of the worst of his food no-no’s. I will make him sephardic for pesach and try to give him small amounts of rice and my rav said I may and should up give him his soy products over pesach. I could still use ideas and advice and suggestions. thank you. Also, if anyone needs support or chizuk (or non-pesach) ideas or advice with hirchsprungs disease or with ileostomies or related, you may contact me through moderators.

    #1137377
    newsreader
    Participant

    bh18 – my 3 year old son has hirchsprungs disease and we are bh getting to know what is ok for him to eat.

    bli ayin hara so far this yom tov he has been ok, he has had a little of both types of matzos, hand and machine baked, and we try and giving him vegetables to counteract the matzos, if the moderators allow it would be nice to speak with you about our experiences.

    #1137378
    2qwerty
    Participant

    Newsreader,

    There is a different forum better suited for such discussions its called frum support look it up in google.

    #1137379
    bh18
    Participant

    Moderators, please ask ‘newsreader’ for permisssion then forward my email address to ‘newsreader’. I would like to communicate with her regarding diet, suggestions, advice and such. Thank you

    #1137380
    JCCSG
    Member

    BH18 & newsreader if you have a chance please contact me

    Moderators, please ask ‘BH18’ & ‘newsreader’ for permisssion then forward my email address to ‘BH18’ & ‘newsreader’. I would like to communicate with him/her. Thank you

    #1137381
    newsreader
    Participant

    JCCSG and bh18, it would you be nice for you to contact us. Waiting to hear from the mods.

    #1137382
    JCCSG
    Member

    newsreader, you can see my info (phone number and email) above…

    #1137383
    newsreader
    Participant

    I guess the mods don’t want us to talk together, too bad

    #1137387
    bh18
    Participant

    Newsreader, if you can find a copy of the last country yossi magazine (June 2012 Brooklyn ny) my sister wrote an article titled bathroom blessings. It’s about my son, his hirschsprungs disease, his permanent ileosotmy and mostly about the amazing chessed done for us all over. At the end of the article she wrote an email address we created for people to contact me for support and suggestions. I tried including that email address in a previous post but the mods deleted the post. Pease try to obtain a copy of the article and email me at that address. Thank you

    #1137389
    JCCSG
    Member

    #1137392
    JCCSG
    Member

    Hi All,

    Here we are with our update! our postponed event has been rescheduled on Monday, January 7, 2013.

    Please reserve the date! and help us spread the word!

    More details will follow!

    For comments and suggestions (or to help us out) feel free to contact us anytime by email or phone number. And please share with us!

    #1137393
    JCCSG
    Member

    A Giten Erev Shabbos,

    Here we are with some more details of our next JCCSG Education & Support event.

    The event will take place on Monday ???? ????, January 7, 2013. at The Continental Hall, 75 Rutledge St. Williamsburg, Brooklyn NY 11211. starting at 7:30 pm Sharp!

    We will have the honor that the Famous Dr. James F. Marion, MD, Gastroenterology, Associate Clinical Professor of Medicine at Mount Sinai Hospital. (of the well known Dr. Present & Dr. Chapman office) will be attending an addressing the issue of: “IDB – Everything you wanted to know but were afraid to ask…”

    Followed by a Questions & Answer forum!

    You can call us or email us with your questions, and we will take some questions live as well.

    Followed by “IBD and Nutrition” by Dr. Joshua Zell, RD, Kingsbrook Jewish medical Center.

    The program includes: *Role of Nutrition, *Overview of Diets used by IBD Patients, *Eating well with IBD, *Tools and Nutrition resources.

    Followed by a “Yiddish” spiritual speech of a highly respected Ruv. (more details to follow)

    ~

    For comments and suggestions feel free to contact us anytime by phone or email.

    Also we would like to ask again and again.. please help us spread the word… you probably know people which are not on our mailing list.

    Have a Good Shabbos! and will keep you updated!

    #1137394
    JCCSG
    Member

    Hi,

    ??? ????? ????? ???????, ?? ???? ???????

    ??? ?????? ?”? ????”?

    ??”? ?????? – ???? ????

    #1137395
    JCCSG
    Member

    Hi all,

    Burech HaShem we are finally here again! We are proud to announce about our “5th” JCCSG Education & Support Event!

    This event will be held for the first time in Borough Park, Brooklyn, on Monday ???? ?????? (Parshes Toldes), October the 28th.

    Please reserve the date! and help us spread the word!

    Details will follow!!!

    For comments, ideas and suggestions (or to help us) feel free to contact us anytime by email or phone.

    #1137396
    JCCSG
    Member

    To all our friends,

    Here are additional details regarding our next “JCCSG Education Symposium and Support Event”. Due to overwhelming demand, we have scheduled for the first time an inaugural education program for parents and caregivers with reference to current topics in Pediatric IBD.

    This event will take place on Monday, ???? ??????, October 28, 2013. At The Spinka Hall, 1466 56th St., Borough Park, Brooklyn NY 11219. Starting at 7:30pm Sharp!

    Our program includes:

    Understanding Inflammatory Bowel Disease (IBD):

      Dr. Rabin Rahmani, M.D.

      Physician at Brooklyn Gastroenterology and Endoscopy Associates.

      Director of Medical Education and Research Department of Gastroenterology of Maimonides Medical Center

    *

    Treatment Approaches in IBD:

      Dr. Saul S. Agus, M.D.

      Clinical Assistant Professor of Medicine, Gastroenterology at Mount Sinai

    *

    Understanding Pediatric IBD:

      Dr. Keith J. Benkov, M.D.

      Chief, Division of Pediatric Gastroenterology

      Director, The Children’s IBD Center at Mount Sinai

    *

    Followed by a Question and Answer session with a Three Doctor Panel.

    Please call or email with your questions in advance as we will only be able to accept some questions at the event.

    For any other comments and suggestions, please feel free to contact us anytime by phone or email.

    Also, please help us spread the word. You probably know some people who are not on our mailing list… please forward this to them.

    We look forward to keeping you updated.

    #1137397
    JCCSG
    Member

    To all our friends,

    Here are some additional details regarding our next “JCCSG Education Symposium and Support Event“. Due to overwhelming demand, we have scheduled for the first time an inaugural education program for parents and caregivers with reference to current topics in Pediatric IBD.

    This event will take place next week Monday, ???? ??????, October 28, 2013. At The Spinka Hall, 1466 56th St., Borough Park, Brooklyn NY 11219. Starting at 7:30pm Sharp!

    As in previous events, we will have educational presentations. For adults our program includes:

    Treatment Approaches in Inflammatory Bowel Disease (IBD):

      Dr. Asher Kornbluth, M.D.

      Clinical Professor of Medicine,

      Gastroenterology Mount Sinai Medical Center

    *

    Understanding Inflammatory Bowel Disease (IBD):

      Dr. Rabin Rahmani, M.D.

      Physician at Brooklyn Gastroenterology and Endoscopy Associates.

      Director of Medical Education and Research Department of Gastroenterology of Maimonides Medical Center

    *

    For Pediatric IBD:

    Understanding Pediatric IBD & Growth:

      Dr. Keith J. Benkov, M.D.

      Chief, Division of Pediatric Gastroenterology

      Director, The Children’s IBD Center at Mount Sinai

    *

    We will have a question and answer session led by a three doctor panel.

    Please call or email with your questions in advance as we will only be able to accept some questions at the event.

    For any other comments and suggestions, please feel free to contact us anytime by phone or email.

    Also, please help us spread the word. You probably know some people who are not on our mailing list… please forward this email to them.

    We look forward to keeping you updated.

    #1137398
    JCCSG
    Member

    Hi all,

    We are currently in the planing stages of our next symposium,and we welcome your input and suggestions.

    We have had numerous requests to arrange a women’s only educational event where many women’s issues affected by Crohn’s disease and Ulcerative Colitis can be freely discussed. We have been working during the past few weeks to make this happen and woulds appreciate your opinion and concerns regarding the topics to be addressed. Also, we still have not decided on location; what do you say?

    We’re working hard to get this done; please help us out and send us an email [email protected] or call us at 718-635-2274 with your advice and comments.

    We thank you in advance!

    We’ll keep you posted as details are finalized

    #1137401
    JCCSG
    Member

    The Overwhelming demand and the positive feedback has inspired us to forge ahead with subsequent events

    Which will be held on Tuesday, ???? ??????, November 18, 2014 – 7:30pm Promptly, At The Pointe Plaza Hotel, 2 Franklin Ave., Brooklyn NY 11249

    As in previous events, we will have educational presentations. For adults our program includes:

    Opening Statement:

    Dr. Simon Lichtiger, M.D.

    Associate Professor of Medicine, Director of the Inflammatory Bowel Disease (IBD) Program; Columbia University Medicine Center

    Take Charge Managing:

    • Current treatments and surgical approaches in IBD
    • Risks and benefits of these treatment approaches
    • Steps to take when re-evaluating the treatment plan if/after current therapy fails
    • How to advocate for optimal IBD care

    Dr. Suneeta Krishnareddy, MD

    Assistant Professor of Medicine, Gastroenterology, Columbia University Medicine Center, New York-Presbyterian Hospital

    ??

    IBD and Fertility:

    Dr. Elana Maser, M.D.

    Assistant Professor Medicine, Gastroenterology Mount Sinai Hospital

    For pediatric our program also includes:

    ?Pediatric IBD and Developing & Growth:

    Dr. Nanci Pittman, M.D.

    Assistant Professor Pediatric Gastroenterology Mount Sinai Hospital

    Followed by a Three Doctor Panel, and a Question and Answers Session, Moderated by Dr. Lichtiger.

    Please call or email with your questions in advance as we will only be able to accept some questions at the event.

    For any other comments and suggestions, please feel free to contact us anytime by phone or email.

    Also, please help us spread the word. You probably know some people who are not on our mailing list… please forward this email to them.

    We look forward to keeping you updated.

    #1137402
    JCCSG
    Member

    This is just a friendly reminder to TONIGHT’S LADIES ONLY Symposium taking place at “??Pointe Plaza Hotel, 2 Franklin Ave. Brooklyn NY 11249, The entrance is at the corner on Wallabout St., Starting at 7:30pm promptly.

    This event is for Patients, Wives, Mothers and caregivers of people suffering from Crohn’s Disease and Ulcerative Colitis?.

    ?

    Your presence will greatly enhance the event. Come and be inspired. And please try to be on time so we should be able to start and end on time.

    There will NOT be a Live online Video hookup, nor Teleconference!

    A quick recap on our program:

    *Welcome and Introduction

    *Opening Statement:

    Rhondell Domilici

    Regional Director Metro New York/New Jersey/Philadelphia, Crohn’s & Colitis Foundation of America (CCFA)

    *Take Control: Managing IBD Decisions

    Current treatments and surgical approaches in IBD?

    ?Risks and benefits of these treatment approaches

    Steps to take when re-evaluating the treatment plan if/after current therapy fails

    How to advocate for optimal IBD care

    Dr. Suneeta Krishnareddy, MD

    Assistant Professor of Medicine, Gastroenterology, Columbia University Medicine Center, New York-Presbyterian Hospital

    Keynote Speaker:

    *IBD and Fertility & Pregnancy:

    Dr. Bindia Jharap, M.D.

    Gastroenterology Mount Sinai Hospital

    *IBD and Shidduchim, Why hide it???!:

    Dr. Simon Lichtiger, M.D.

    Professor of Gastroenterology, Director of the Inflammatory Bowel Disease (IBD) Program; Columbia University Medicine Center,

    *Pediatric IBD and Developing & Growth:

    Dr. Nanci Pittman, M.D.

    Assistant Professor, Pediatric Gastroenterology Mount Sinai Hospital

    *Three Doctor Panel – Question & Answers Session:

    Moderated by Dr. Lichtiger

    *Closing Remarks

    We hope to greet you personally.

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