Reply To: Support Group for Epilepsy

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#669188
starwolf
Member

People need support groups for a number of reasons, whether or not the disease is controlled.

Think about it, it could be that the parents find it difficult to convince a child to take medication, or avoid certain activities. And furthermore, some people feel better after sharing their experiences with others who have similar problems. It is quite difficult to live with a chronic disease, especially if the patient is your child.

This is especially a problem in the Hareidi community, which stigmatizes many diseases, especially neurologic and psychiatric disorders. Didn’t you read CQ’s post about the fact that the parents could not tell her parents or in-laws? Support groups can be a great help in educating the community about how to deal with these issues.