Reply To: PANDAS

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#1460010
PANDAS Dad
Participant

Don’t worry so much about the Cunningham panel. Most will not treat based off of that. What it may do is help with insurance when you get denials, if something came up on the test.

So don’t listen to anyone who tells you PANDAS is bogus. It’s as real as it gets. there are some kids who get marked improvement just from antibiotics alone (hard to say it was something else, when hallucinations, rages, anxiety, etc goes away after antibiotics if it was a psych issue it wouldn’t disappear so quick). In any case, the path/impact is different for each kid and treatment varies by provider. Each have their own antibiotics that they prefer to use. Some recommend Tonsil and adenoidectomy and some don’t. Many do steroid bursts, IVIG and plasmaphersis. (I have gone though all with my son). Some then go on to an immunosuppressant if that above doesn’t work.

Many families will tell you diet and homeopath has helped them tremendously, we did not try this route (so can’t tell you if it works or not)

Since I have gone though a lot of this, I tried to list my email in the previous thread, but I guess the moderator won’t allow that.