Reply To: NF1

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no name

Searching the web I found alot of general information but when I tried looking for more in depth info on the particular aspects of NF my child has (plexiform neurofibroma, optic glioma) I couldn’t really find anything more than broad outlines. Also, being fairly new to this (she was diagnosed with NF at the end of June and the 2 specific conditions I just found out about after an MRI yesterday) I thought I could maybe touch base with someone who has “been there done that”.

Joseph – I have no reason to assume I am related to nameless. I am actually no name for this thread only.