Reply To: Turners Syndrome

I would… where to start? my daughter is still a toddler, already had cardiac surgery, has never ending ear issues, is on growth hormones for a year&half already(daily injections), had tons of feeding issues, tons of therapy, yet anyone who meets her would never know what she goes through & thinks she is the cutest happy go lucky kid. Everyone comments how she’s really catching up & I bite my tongue & hold back from saying – yeah, growth hormones are wonderful!

Now she’s still little, and so are her siblings, but I cant stop worrying about how this will all play out – I want her to stay happy, I really dont want her to have self-pity as she grows up.

Also-for now it’s basically a secret-only grandparents know about it-& it’s only so that she’ll develop without the world pitying her – but I keep wondering if thats good or not? is there ny reason for her school to know? wold that be a benefit or disadvantage?

whatever, I an keep going on- but what’s anyone else with experience have to say on the matter?