Oomis1105, I don’t know anything about this illness. However, I just hope that who ever you are using as your doctor, I hope he’s really good in this field. Because if you get someone who is not very long in the business &/or not too experienced, I wish you luck!! You need to have someone who is extremely good at diagnosing various symptoms.
I can give you the name of the Gastroenterologist whom I use. He’s uptown Manhattan. But these days, he’s only there part of the week since he’s semi-retired. But, he happens to be top of the line. His name is Dr. Present & he’s located at 12 East 86th st. bet. Madison & 5th Ave’s. His number is 1-212-861-2000. Call during the day till 3:30 P.M.-that’s when they stop answering calls. I just don’t know as to whether he takes new patients or not. So you’d need to find that out. Also, he doesn’t take any insurance. So you’d need to pay out of pocket & send the claim over to your insurance carrier if they accept out of network insurances.
Hatzlacha Rabba whatever you decide to do & Refuah Sh’laimah!!