Reply To: Jewish Crohn's & Colitis Support Group 'Education Event'

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bh18
Participant

Thank you, right path! I’m glad I’m not forgotten about. I could use even more guidance now than before Ostomy was placed. My son is not eating over yom tov since he eats mostly white flour products and matzah is dangerous for him. If anyone has ideas please,help us. My son keeps saying how hungry he is and I resorted to giving him American cheese, the least of the worst of his food no-no’s. I will make him sephardic for pesach and try to give him small amounts of rice and my rav said I may and should up give him his soy products over pesach. I could still use ideas and advice and suggestions. thank you. Also, if anyone needs support or chizuk (or non-pesach) ideas or advice with hirchsprungs disease or with ileostomies or related, you may contact me through moderators.