CHILD born with a cleft palate

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  • #597308
    relaxation
    Member

    A friend of mine confinded with me today that his child born a few months ago hwas born with a cleft palate. His insurance will not cover anyware near all the precedures and has tried to reach out to many organizations for financial assistance as he doesn’t have the money do cover these procedured. Any advice , leads chizuk I could pass on…….

    #775453
    am yisrael chai
    Participant

    I believe it’s called a cleft palate. If this is in the US, try going to the congressperson’s or assembly person’s office for assistance in getting coverage. There are insurances that cover such procedures & do not consider it elective cosmetic surgery.

    Hatzlacha!

    #775454
    seedys
    Participant

    He can email Dr. Rick Hodes- a “frum” doctor, based in Ethiopia.

    His email is [email protected]

    Dr. Rick Hodes- was featured in an article in the Jewish Action magazine of the Orthodox Union. A book was written about him, “This is a Soul”

    He has connections with doctors all over the world and may have suggestions and recommendations. It may take time for him to answer his emails, but he does reply.

    Good luck and Refuah Shlaima B’karov

    #775455
    relaxation
    Member

    My mistake, my friends child was born with a cleft palate. Mods pls correct my heading to cleft palate.

    #775456
    Midwest2
    Participant

    Cleft palate surgery is definitely not cosmetic. With a cleft palate the child may have trouble drinking, and will almost certainly have trouble speaking understandably.

    Definitely go to your congressperson or assembly person – it’s a must for your child to live a normal life.

    I can’t imagine why no frum organization will help. Has he tried Project Rofeh?

    #775457
    sem20
    Member

    Cleft Palate Foundation

    The Cleft Palate Foundation (CPF) is a non-profit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects.

    http://www.cleftline.org

    #775458

    besides for not being able to speak, it can be dangerous. It’s serious i can’t beleive the insurance wont cover

    #775459
    relaxation
    Member

    He had medicaid insurance, because he is using a doctor in boston medicaid won’t cover most of the costs. He lives in brooklyn and is commuting for all procedures trying to do the best for his child

    #775460
    ZachKessin
    Member

    See if he can find a surgeon in NYC. Yes there are some first rate surgeons in Boston but there are also some in New York. I would also knock on the door of every hospital administrator I can find with my hat in my hand asking for help. They don’t have to give it to you but you might get lucky.

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