December 12, 2010 12:54 am at 12:54 am #593422thinking and thinkingMember
I’m starting this thread as I’m trying to decide on an approach to my Crhon’s.
I was diagnosed with Crohn’s disease about 5 years, was on Remicade, but became allergic to it, as well as lots of Prednisone and Flagyl. I also did the SCD diet for several months- it helped me a little, but was very challenging to maintain.
Currently, I’m considering going back to the SCD diet. Do you know anyone who did the SCD diet for 2 years and then was able to go back to normal foods without symptoms?December 12, 2010 3:37 am at 3:37 am #8252612qwertyParticipant
Well there is no single cure because every Crohns person has different symptoms. I think its important to treat each problem separately and not get stuck on typical cures.
Instead of flagyl you can try xyfaxan.
Instead of remicade you can try humira.
Instead of scd you can try to figure out which specific foods give you the most problems.
Also, with Crohns its very important to drink lots of liquids but try different ones because some drinks may do more harm than good.December 12, 2010 1:29 pm at 1:29 pm #825262tzippiMember
There’s no typical time for SCD. I would seriously, seriously look into it if I were you. Contact Esther Weiss at Digestive Wellness. They have started charging for mentoring. It might be worth it, or you might be able to find an “SCD Buddy” via some of the email groups, like KosherSCD.
And yes, Crohn’s hits the digestive system at different parts, and in different ways, so the permutations are different and the medical cocktail combos prescribed vary, but there is a real possibility of at least avoiding the biologics with SCD. (Of course you should continue your meds, even on SCD.)
Hatzlacha and refuah shleima!April 7, 2011 4:54 pm at 4:54 pm #825264
2qwerty: regarding food, most people are getting flare-ups by eating: Sugar, Dairy, Dried fruits and some fruits.April 8, 2011 12:22 am at 12:22 am #825265brotherofursParticipant
my sister HAD chron’s. She went on the scd diet but also went off of dairy, VERY strictly for a year in a half. Now she hardly has it anymore. She still has to watch what she eats but not half as much as before. She’s able to eat normal things, sometimes though her stomach may hurt if she ate a lot of candy and carbs that day or sm like that. but thank G-d she’s really cured and she gained all the ounds back that she lost from chron’s.April 8, 2011 12:23 am at 12:23 am #825266brotherofursParticipant
oh btw she didnt take any medicationApril 8, 2011 1:38 am at 1:38 am #8252672qwertyParticipant
I think anyone can overcome this disease just by watching what they eat. And I don’t recommend eliminating any food group just have to figure out what can be eaten with what.
I know someone who overcame it and stopped taking all the meds.May 10, 2011 6:10 pm at 6:10 pm #825268The CR nutritionistMember
The SCD does help control symptoms for many patients. In answer to your question, if you follow the SCD diet for a long time, it can be a great way to manage your symptoms but your symptoms could resurface at a future time, because the disease is not cured with the diet,it’s only controlled.May 10, 2011 7:47 pm at 7:47 pm #825269October 26, 2011 1:17 pm at 1:17 pm #825270EnglishvegMember
ihave a friend who has crohn’s, went on the diet and is now eating normal food. he has ben ‘clean’ for 2 years now. i personaly found that the diet is extremely drastic and it is more usefull to try conventional medicine first. humira that someone suggested is also pretty drastic with some major possible side effects including cancer. Theri s is a pretty good medicine on the market called infliximab that i would recomend that you look into. ote that with all medicines and diets for Crohn’s nothing works for everyone. Also note that unless you are going to stick to the scd diet to the nth degree it it is useless.November 10, 2011 6:01 pm at 6:01 pm #825271
But, now all this will change! With the new study that will be released in about 2 month, a lot of new info will be available.
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