Lymphedema – any ideas?

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  • #603117
    Be Happy
    Participant

    Here in England I have no joy with the national health service with this condition. I have it on both arms and after 20 fittings still don’t have sleeves that fit me! I would consider going to New York or Eretz Yisroel. I know it would involve a big expense but feel I need to do something.

    #872487
    Health
    Participant

    Yes, there is medical treatment for it. In Israel, you might find the same problem as England – since their medicine is socialized.

    Wait folks, our system isn’t yet Socialized, but our Pres. promised it will be shortly!

    #872488
    support
    Member

    There are physical therapists that do manual therapy (massage) to drain and reroute the lymph fluid. There also is compression therapy using bandages as well as a pump to drain and stop the buildup of fluid. You can look up Beyond Basics Physical Therapy in NYC directed by Amy Stein. Roseanne Cruz specializes in lymphedema treatment. They do have other international patients so you shoulk be able to work something out with them.

    Hatzlacha Rabbah,

    Refuah Sheleimah!

    #872489
    Be Happy
    Participant

    Thank you Support. Any more leads or advice greatly appreciated.

    #872490
    Nechomah
    Participant

    I see that there is a lymphedema support site uklymph com that can give you info and have you looked into the Whiteley clinic in Surrey. I see that the term lymphedema (America version) is often spelled lymphoedema (British version) of the Latin term, so you could maybe get more info that way. If you’ve seen these, post and we’ll look into other options. You have to see whether there are private treatment locations on your side of the atlantic that would be cheaper than thinking of going to America for treatment (where you would also have to pay for treatment out of pocket).

    Hatzlacha and refuah shleimah!

    #872491
    blinky
    Participant

    Be Happy- (I was trying to get your attention in the Please help thread) I just wanted to know based on our “conversation” last year if its still needed… (I couldn’t get mod 80)

    #872492
    Be Happy
    Participant

    So sorry Blinky – Just can’t remember!

    #872493
    blinky
    Participant

    tehillim….?

    #872494
    Be Happy
    Participant

    Thanks blinky – I am B”H over the worst. For that I am grateful and to everyone who had me in their tefillas. I need help that Bezras Hashem I overcome all the complications it has left me with.

    #872495
    user12345
    Member

    they are experts known all over the world-specialised in this.

    Unfortunately we know too well sth about lymphedema and they are the biggest experts in this field….

    Its close to zrh airport switzerland.

    Hazluche Rabbe!!

    #872496
    Be Happy
    Participant

    Thank you so much for all your information. When I began this thread I felt so alone. It makes a huge difference to know there is help out there. Even more important to me is how complete strangers care enough to share this information.

    #872497
    Be Happy
    Participant

    Does any one know a doctor or therapist that they could recommend in New York?

    #872498
    support
    Member

    Roseanne Cruz at Beyond Basics in NYC is great. I do not know anyone else. If there is a specific reason why you can not see her try calling her and explaining why it won’t work out and see if she can recommend anyone else. I know they have referred other PT patients else where they might know other lymphedema therapists who would be good for you.

    Hatzlacah Rabbah

    Refuah SHeleimah!

    #872499
    Health
    Participant

    Be Happy – Look up – “support” did.

    #872500
    The Best Bubby
    Participant

    Be Happy: There is excellent treatment in London at Chai Lifeline in Hendon. 144-146 Great North Way, Hendon, NW4 1EH.

    Tel: 020 8202 2211 and the Fax: 020 8202 2111

    Hope this helps you. Be matzliach and have a very speedy refuah shelamah! Amen!

    #872501
    Be Happy
    Participant

    Tne Best Bubby: Thank you so much I am going to Chai and they do have excellent treatment. Unfortunately my condition was neglected and I feel I need more than they can give me.

    Health, Support: Thank you so much for your recommendation. I hope to make an appointment in the next few days at Beyond Basics in N.Y iy”H

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