Home › Forums › Health & Fitness › Lymphedema – any ideas?
- This topic has 15 replies, 7 voices, and was last updated 12 years, 7 months ago by Be Happy.
-
AuthorPosts
-
April 26, 2012 1:26 pm at 1:26 pm #603117Be HappyParticipant
Here in England I have no joy with the national health service with this condition. I have it on both arms and after 20 fittings still don’t have sleeves that fit me! I would consider going to New York or Eretz Yisroel. I know it would involve a big expense but feel I need to do something.
April 26, 2012 4:12 pm at 4:12 pm #872487HealthParticipantYes, there is medical treatment for it. In Israel, you might find the same problem as England – since their medicine is socialized.
Wait folks, our system isn’t yet Socialized, but our Pres. promised it will be shortly!
April 26, 2012 6:44 pm at 6:44 pm #872488supportMemberThere are physical therapists that do manual therapy (massage) to drain and reroute the lymph fluid. There also is compression therapy using bandages as well as a pump to drain and stop the buildup of fluid. You can look up Beyond Basics Physical Therapy in NYC directed by Amy Stein. Roseanne Cruz specializes in lymphedema treatment. They do have other international patients so you shoulk be able to work something out with them.
Hatzlacha Rabbah,
Refuah Sheleimah!
April 27, 2012 9:46 am at 9:46 am #872489Be HappyParticipantThank you Support. Any more leads or advice greatly appreciated.
April 27, 2012 1:28 pm at 1:28 pm #872490NechomahParticipantI see that there is a lymphedema support site uklymph com that can give you info and have you looked into the Whiteley clinic in Surrey. I see that the term lymphedema (America version) is often spelled lymphoedema (British version) of the Latin term, so you could maybe get more info that way. If you’ve seen these, post and we’ll look into other options. You have to see whether there are private treatment locations on your side of the atlantic that would be cheaper than thinking of going to America for treatment (where you would also have to pay for treatment out of pocket).
Hatzlacha and refuah shleimah!
April 27, 2012 1:32 pm at 1:32 pm #872491blinkyParticipantBe Happy- (I was trying to get your attention in the Please help thread) I just wanted to know based on our “conversation” last year if its still needed… (I couldn’t get mod 80)
April 27, 2012 2:06 pm at 2:06 pm #872492Be HappyParticipantSo sorry Blinky – Just can’t remember!
April 27, 2012 2:51 pm at 2:51 pm #872493blinkyParticipanttehillim….?
April 27, 2012 6:02 pm at 6:02 pm #872494Be HappyParticipantThanks blinky – I am B”H over the worst. For that I am grateful and to everyone who had me in their tefillas. I need help that Bezras Hashem I overcome all the complications it has left me with.
April 28, 2012 8:06 pm at 8:06 pm #872495user12345Memberthey are experts known all over the world-specialised in this.
Unfortunately we know too well sth about lymphedema and they are the biggest experts in this field….
Its close to zrh airport switzerland.
Hazluche Rabbe!!
April 29, 2012 5:57 pm at 5:57 pm #872496Be HappyParticipantThank you so much for all your information. When I began this thread I felt so alone. It makes a huge difference to know there is help out there. Even more important to me is how complete strangers care enough to share this information.
May 4, 2012 6:25 pm at 6:25 pm #872497Be HappyParticipantDoes any one know a doctor or therapist that they could recommend in New York?
May 6, 2012 4:55 am at 4:55 am #872498supportMemberRoseanne Cruz at Beyond Basics in NYC is great. I do not know anyone else. If there is a specific reason why you can not see her try calling her and explaining why it won’t work out and see if she can recommend anyone else. I know they have referred other PT patients else where they might know other lymphedema therapists who would be good for you.
Hatzlacah Rabbah
Refuah SHeleimah!
May 6, 2012 5:02 am at 5:02 am #872499HealthParticipantBe Happy – Look up – “support” did.
May 6, 2012 8:26 am at 8:26 am #872500The Best BubbyParticipantBe Happy: There is excellent treatment in London at Chai Lifeline in Hendon. 144-146 Great North Way, Hendon, NW4 1EH.
Tel: 020 8202 2211 and the Fax: 020 8202 2111
Hope this helps you. Be matzliach and have a very speedy refuah shelamah! Amen!
May 6, 2012 5:13 pm at 5:13 pm #872501Be HappyParticipantTne Best Bubby: Thank you so much I am going to Chai and they do have excellent treatment. Unfortunately my condition was neglected and I feel I need more than they can give me.
Health, Support: Thank you so much for your recommendation. I hope to make an appointment in the next few days at Beyond Basics in N.Y iy”H
-
AuthorPosts
- You must be logged in to reply to this topic.