Misophonia

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  • #593004

    does anyone suffer from it, and how do you cope?!

    #965509

    “Misophonia is a rare and little understood disorder that is characterized by an extreme aversion to selective sounds. The disorder can occur in children and adults of any age. When exposed to the sounds, the person with misophonia, experiences feelings of rage and extreme anxiety. The particular sounds that a misophonia sufferer is sensitive to varies with each person. Chewing is a noise that commonly bothers misophonia sufferers. Other common noise sensitivities are the sound of scratching, tapping, throat clearing and nasal sniffling”

    #965510

    This sounds like a sensory problem. Is it something different? I have helped many people with sensory problems decrease their auditory sensitivity through overall SI treatment for hypersensitivity and through auditory retraining (I use The Listening Program because it is the most cost effective and I have had the best results with it). It really makes a HUGE difference (note that I said difference, not cure). If it isn’t related to sensory integration processing or dysfunction then this may not be the right solution.

    #965511

    “The exact cause of misophonia is unknown. There may be psychological causes, neurological causes or both. A portion of people diagnosed with misophonia also have obsessive compulsive disorder (OCD), which makes a psychiatric element to the disorder possible. Because not every person with misophonia has OCD, it is believed that the condition is not purely psychological. It is common for misophonia and hyperacusis, another rare hearing disorder, to coexist, which leads to the theory that misophonia is caused by a neurological condition. The cause of misophonia may be the brain processing sound information incorrectly. Instead of processing the sounds as normal sounds, the brain perceives the sounds with increased intensity and processes the sounds as a danger sound instead of a harmless sound.”

    #965512

    bump 😀

    anybody know how to deal with this???

    thank you! 😀

    #965513
    Toi
    Participant

    pop your ear drums.

    #965514
    The Frumguy
    Participant

    Sounds like every chasunah I’ve been to.

    #965515

    thanks Toi for that well thought out answer! it did make me :D, but somehow that doesn’t really appeal to be as a solution…

    anybody else? please???

    thank you! 😀

    #965516
    Torah613Torah
    Participant

    Go to an audiologist?

    #965517
    anon91
    Participant

    hi smile. i read the cr from time to time never post until i saw this thread. i have been a misophonia sufferer for years without actually knowing what it was up until a few months ago. there is no known cure for it but the symptoms are said to be reversible rather then curable. there is so little known about it atm that even alot of doctors havnt heard of it yet when i first went to my dr about it he didnt know what i was talking about had had to do his research before he could help me any further!. the best people to help are ENT specialists who have knowledge in this area ( you can find them just by googling) or audilogists. (if you try talking to ur gp they can mayb give u a refferal to someone who can help). they are not so easy to find and can be very expensive also. i recently made contact with an audiologist who may hopefully be the answer for me. hope u are able to find the right dr to help u! good luck!

    #965518

    thank you! but do you have any advice about what to do on a day to day basis? sometimes it seems like it’s not a problem, and sometimes it’s so hard to stay calm and not blow up cuz you know logically that they’re not doing anything, but that feeling is ripping into you… during the week i plug into my ipod, but if someone is eating in class or it’s shabbos, or i don’t have my ipod, i have to either nail dig myself to keep from screaming or going insane, or i have to leave the room, which i can’t always do… any advice???

    thank you!

    and thank you torah!

    😀

    #965519
    fkelly
    Member

    Can you explain the difference between this and sensory problems? thanks!

    #965520
    anon91
    Participant

    smile, no unfortunatly got nothing 🙁 i totally understand ething u said though its so hard. for me the situation is always the worst at home rather then anywhere else which is so hard because i never have an explanation for y i suddenly change into so angry from one second to the next. and y i was angry for apparantly no reason. i have to hide out in my bedroom alot and i missed out on alot of family time bc of it. i wish i had any advice for both of us how to manage with it better. my biggest mistake mayb u can avoid if your home situation is difficult bc i never felt able to explain wat i felt to my parents and it just caused so much tension and arguments just bc they simply didnt understand me. and i never understood myself enough to realise i should have tried to explain what was goin on. only now in the past few months i was able to put a name to it and realise im not crazy!! just dont let urself suffer in silence try and do something to get some help!! wish u loads of luck for shabbos!! i know il be thinking of you wen im at my shabbos table 🙂

    fkelly:

    sorry i really dont know much about sensory problems?

    #965521
    fkelly
    Member

    Misoponia definitely sounds more severe than sensory issues.

    anon91- Regular things can bother someone with sensory issues. For example, the feeling of a clothing tag, or a strong smelling food. With sound, certain sounds will bother them very much. Sort of like the feeling people get when someone scratches a chalkboard for a long time- it bothers you tremendously and makes you tense and anxious. But with a regular sound- such as certain ringtones (different for each person)

    #965522

    Thank you anon91! it’s also worse in my house for me, but i did try a few years ago (when i first heard about this) to explain. i was told to grow up and deal with it… oh well 😀 but yeah, having to explain why you’re suddenly so agitated and angry… it is better in other places, but sometimes it’ll happen in another place, and it’s so awkward cuz i’ll start fidgeting and tapping and naildigging and everything to keep from exploding on the person… but you know what i mean, sadly. if i think of anything, i’ll let you know. HATZLACHA RABBA!!!! have a great shabbos! 😀

    fkelly-i guess it could be a type of sensory issue, not really sure. imean, the feelings are right, but tend to be more extreme. the sounds that bother me most are people eating, breathing heavily (which is a problem cuz my brother has asthma),people smacking their lips, and then sometimes other sounds, depending on the moment. if it is a sensory issue, it might not be offically, as most doctors still don’t know about it…

    😀

    #965523
    fkelly
    Member

    Wow! Good luck!

    #965524
    anon91
    Participant

    fkelly: based on what you said, there def is some sensory problems involved (speaking for myself only) and i can relate to some of the examples you gave also. how are are sensory problems usually dealt with?

    smile: hi hope shabbos went ok. was up and down for me 🙂

    #965525
    fkelly
    Member

    I’m actually not quite sure how they are dealt with- possibly sensory integration therapy? OT? I dont really know..

    #965526
    Working Mom
    Member

    I am an audiologist who deals with misophonia. I would highly recommend finding an audiologist in your area who uses Tinnitus Retraining Therapy to treat misophonia. You can find more about misophonia and using TRT to treat it here:http://www.tinnitus-pjj.com/

    Wishing you much Hatzlacha- it is extraordinarily frustrating, but can be treated.

    #965527
    Neuroscience
    Member

    A new book has just been published. Its called, Sound-Rage. A Primer of the Neurobiology and Psychology of a Little Known Anger Disorder (Chalcedony Press, 210 pgs) and available from amazon.com.uk and amazon.com.

    I hope this helps.

    #965528
    Toi
    Participant

    do we get 10% off with mention of this post.

    #965529
    oomis
    Participant

    I wonder if there is any correlation between this condition and sounds to which a fetus may have been exposed in utero.

    #965530

    Thank you neuroscience!

    oomis-i don’t think so because i have a twin, and he has no such problems, b”H!

    😀

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