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  • in reply to: Worrying about something that someone 16 should not be worrying about #1060385
    RayofLight
    Member

    Not USA time, that would be why.

    Thanks for the advice so far, I spoke to her about it today, and she knows I am going to miss her, she tried to assure me that she’ll come to school after she gets engaged (although that it not our school’s policy, she was given special permission for being chassidish) and we’ll stilll be friends…

    But I don’t know! What’s it like anyway? Such a relashenship? Anyone care to share expiriences!?

    in reply to: Why No One Posts Here Anymore #1060810
    RayofLight
    Member

    6)

    in reply to: #1060017
    RayofLight
    Member

    There was recently an article in the teenpages about autism, and high functining autism.

    B”H some time in the next few weeks there is going to be an interveiw in teenpages (Mishpacha) about high functioning autsim.

    It is under a pen name, and many ideas that we written here were put into it!

    What is the book you are refering to?

    in reply to: #1060010
    RayofLight
    Member

    Thank you everyone for understanding.

    So I really don’t know what I am or not. I don’t trust the person I’m seeing since she is in touch with my parents, and school. I cannot trust till I’m 18, If anyone could give me a number of a hotline or something that is like anonymous so my parents won’t know, that would be great.

    I actually am speaking to one of my friend’s parents about everything going on, and she is amazing. My mom and dad don’t know and do not like her, she’s actually been where I am (many years ago, she’s in like her 40’s) and understands me.

    So what is this new test? Anyone can explain or give me a link? I did some online tests and all of them said I don’t have it.

    My school knows about this, and they are taking me (when we actually manage to get an appointment) to one of the most known places that specializes in diagnosing this stuff.

    So until then, I wait. I wait, and see…

    in reply to: #1060004
    RayofLight
    Member

    I never thought of it that way.

    It could be possible that since I always was put down and stuff…

    It really is sad how today, most of these so called disorders come from abuse, eating habits, and all sorts of things. It just shows how bad the world has gotten. It’s not like these things are new, but the causes of them has grown, as so has the disorder, and now knowledge of it. If only people would work more on treating the cause.

    I only apply to a few symptoms. In real life, don’t you need most of the symptoms to be called something? Not just 1 or 2?

    So if this was from my environment, question is, are the effects so bad that I will permanently have challenges socially or do I have the ability to learn, understand and be normal.

    By the way, I don’t like talking about people being normal or not cuz everyone has their issues, I try to not dfo that. But right now I’m talking about my feelings, and in my feelings I have to be normal, just hearing the word not normal reminds me of being put down constantly. But in general I believe everyone e has their own issues, one of mine happens to be that for myself I cannot think not normal is okay…I just can’t. Get it?

    Symptoms of Pervasive Developmental Disorder, Not Otherwise Specified (PDD-NOS)

    Impaired social interaction (like all children with autistic spectrum disorder)

    Better language skills than kids with autistic disorder but not as good as those with Asperger’s syndrome

    Fewer repetitive behaviors than children with Asperger’s syndrome or autistic disorder

    A later age of onset

    ASPERGERS

    Children with Asperger syndrome may have speech marked by a lack of rhythm, an odd inflection, or a monotone pitch. They often lack the ability to modulate the volume of their voice to match their surroundings. For example, they may have to be reminded to talk softly every time they enter a library or a movie theatre.

    Unlike the severe withdrawal from the rest of the world that is characteristic of autism, children with Asperger syndrome are isolated because of their poor social skills and narrow interests. Children with the disorder will gather enormous amounts of factual information about their favorite subject and will talk incessantly about it, but the conversation may seem like a random collection of facts or statistics, with no point or conclusion. They may approach other people, but make normal conversation difficult by eccentric behaviors or by wanting only to talk about their singular interest.

    Many children with AS are highly active in early childhood, but some may not reach milestones as early as other children regarding motor skills such as pedaling a bike, catching a ball, or climbing outdoor play equipment. They are often awkward and poorly coordinated with a walk that can appear either stilted or bouncy.

    Further differences in features between people with high-functioning autism and those with Asperger syndrome include the following:

    People with HFA have a lower verbal intelligence quotient

    Better visual/spatial skills (higher Performance IQ) than people with Asperger syndrome

    Less deviating locomotion than people with Asperger syndrome

    People with HFA more often have problems functioning independently

    Curiosity and interest for many different things, in contrast to people with Asperger syndrome

    People with Asperger syndrome are better at empathizing with another

    The male to female ratio of 4:1 for HFA is much smaller than that of Asperger syndrome

    in reply to: #1060002
    RayofLight
    Member

    OURtorah, I’m sorry for bashing you.

    I just am saying that I felt like you were putting me in the group of ‘special needs’ kids. And I’m not that.

    I don;t want to sound like I think less of special needs kids, but all my life I’ve been told by my parents and everyone else that I’m not normal, I don;t do this right, or that right. I need ‘help’ that never actually helped me, just made me feel stupid. Everytime I pass my parents in my own house, they never have had something nice to tell me (they do, sometimes, but that’s even worse since they go back a second later to bad things) like:

    “I hate that shirt on you” she couldn’t say that it wasn’t her style or nothing at all. She continues “I don’t let you wear it, this is why you need help socially, you see, no one else would wear it”

    The thing is, I wore it before a few times, I remember my friends liked it, it looked very nice. My mother has no idea what girls wear my age, but she twists it around so it’s my fault for not being normal.

    This is 1 example how everything said to me by my mom and dad gets twisted around so essentially every time they talk to me they stick in that I’m less and not normal.

    My mom has never been there emotionally, you is forever with her iphone. Even when I was little. I have memories of gan, being beaten up every day, coming home crying, my mom wouldn’t even hug a little crying 4 year old and tell her it would be okay. I had to do what teens do, go to their bed and cry in their pillow. I don;t even think my parents have ever really hugged me before when its not superficial like when I came home from summer camp, a small hug. Now when they try it, I can’t, I get angry. There is a lot more in my picture than just ASD. You are starting to get why I can’t talk to them?

    They aren’t healthy…I’m seeing someone about that now, but what about everything else? I couldn’t dare trust her about it.

    Don;t really get the sencory stuff, sure I figured out why since 3rd grade I could never sleep at night…it was cuz it wasn’t pitch black! Took me 7 or 8 long year of insomnia to get that. Besides that…nothing. I mean I used to be scared of balloons popping and thunder cuz it was loud, but since I became a teen…I guess I just got used to it.

    Nothing else really.

    I don;t expect the world to be able to get that I can only read feelings off faces, nothing else, and that’s not when you are hiding your feelings which most people above the age of 13 tend to do. Then I can’t see anything! I don’t expect the world to understand that sometimes I don’t get the jokes…

    Same here, it’s annoying when people get upset and expect me to know why.

    Why can’t we just TALK? Why is it a big no-no to talk?!?!?!

    People who know me know I’m into this, that you can settle anything by talking. Maybe it’s cuz my parents never want to even try to discuss anything, they just scream. Maybe it’s cuz of this.

    But recently one of my good friends told me something through a third party cuz she was scared of my reaction and didn’t want to tell me since it’s a no-no to talk. I got upset, this is a good friend, she knows me and how I work. She is a newer friend but I can’t understand why since I adapt to her needs that when she has a problem or something we can’t discuss it since that’s my need.

    Now I can’t even talk to her about it, the third party settled it, but how do I even know that this third party wasn’t lying or something. For all I know my friend meant something different…

    Since then we go on as normal…but I really wonder.

    This is so weird becuase I don;t think I’m high functioning ASD, or maybe I’m one of the highest. I’ve never had to stim, I do need my alone time, but that’s something else. I’ve been told I’m a deep person and I can’t stand being around people 24/7 without being with myself…

    I have a few friends like that and they do not have ASD.

    It’s all so confusing!

    RayOfLIght, I had to edit your post a tiny bit. I hope it didn’t affect the message too much. -127

    in reply to: #1059982
    RayofLight
    Member

    My parents will ALWAYS look at me like I’m 5.

    I don;’t think you understood, I am high functioning, so high that no one is sure if I just have a few social quirks or I have high functioning aspergers c(which doesn’t even exist, I looked online, so how could I have it?) to anyone else I look normal.

    I am socially challenged, my nisayon is socially, while others is in other places. I am completely normal.

    No shtooyot about how I’m special needs, I repeat. OURtorah, you know me here as a different name, and probably never will make the connection between that poster and me.

    I am mainstreamed, I’ve been to regular sleepaway camp like agudah or maravah or sternberg. I made camp friends, I do everything like I’m normal.

    Like I said, either people look down at me when I make mistakes when I try so hard, or they expect me to be like down syndrome or something!!! It seems like that is what you are doing OURtorah.

    And if I was posting under my old SN you never would of said such a thing to me. I know you, I’ve been here quite a few years longer that you have. I remember the day you came…

    My parents will always look down on me, there is no relationship happening. This is reality. I need to accept it and learn to deal with it.

    edited to make it more difficult to identify you

    in reply to: #1059979
    RayofLight
    Member

    Totally agree, I have a diff story. Like when people try to teach me I feel like they either think I’m 5 or I’m normal. So I decided it’s better the way I am.

    I’m the same way, people know me as a quirky hyper person…

    I’m going through a lot of other things, plus I have ADHD, so it makes things much more crazy. Like I’ll burst out in tears and I’ll be totally confused. In a group conversation with people who don’t have enough patience for me/don’t like me I’ll get frustrated. Depends on the group, either I totally don’t fit in or go in perfectly…

    But besides that, and mistakes I make along the way…I’m doing okay.

    SomeoneMe2: How far are you on the spectrum??

    Mods: Possibly this could be renamed as a autism spectrum support group???

    in reply to: #1059976
    RayofLight
    Member

    BTW, it was really hard for me to write this, especially because I am a former poster here, and was a regular one at that. After I stopped posting, lurked for a while, and now I saw this. So here I am, under a different name, months/year(s) later.

    I hope no one figures me out, I never could of admitted this under my old SN/UN. I’m only here for this thread, because…well, I had to let people know what is really inside our heads.

    There is so much info now in magazines (jewish) about abuse, disorders, addictions.

    But none about this!!! None at all!!!!!!

    in reply to: #1059975
    RayofLight
    Member

    Golfer and OURtorah, you did not recognize my post.

    I’m somewhere between autistic and normal…they call me high level aspergers, PPD or PDD? I don;t know. What about me? Someone who looks regular but just seems a little off socially?

    How can people be so cruel?

    It seems like no one saw my post, I’m a person too, you know??

    It was really hard for me to sit and come to terms with this right now and actually post here! About this! Please reread my post.

    Can someone tell me why my world is so cruel?

    Why people either expect me to be normal or down syndrome and either treat me like I’m 5 or like I’m not trying hard enough.

    Both are horrible.

    I wish people didn”t know, every person who speaks to my mom and dad think I need to be spoken to like I’m 5 and are suddenly shocked how NORMAL I can be, every time I do something like a normal teen they get shocked and start to say how its such an acheiment, and when I make a mistake, how awful I am.

    I am neither!!! The only people in the world who treat me like I’m normal are my friends, when they know the truth, and the many that don’t, and all the students in school, the nice ones and mean ones treat me like I’m normal too. It’s the only place where I feel people care. But even there I don;t feel safe. I never do.

    Neither at home or in school, I never know when the next attack will come, or if I’ll have a panic attack, or burst out crying, or do something stupid and regret it.

    I never feel safe, I feel like my parents don’t love me cuz they don’t know how to treat me, I only feel safe when I sleep at a friends or am with one of my best friends.

    It’s so hard…

    Why are people to cruel…

    in reply to: #1059967
    RayofLight
    Member

    someoneme2 +100000000000000000000000000000000000000000000

    I totally get you how you feel. I don’t have words for you.

    I don’t know if I’m autistic, they tell me I am. But I am mainstreamed and my friends tell me I’m not…

    I just get so confused!!! I spend so much effort trying to remember social cues and I’m never EVER good enough for the world I live in. And I’m sick of it. Cuz I’m mainstreamed, I’m expected to act like I’m non-autistic cuz I’m not. But at the same time I am a little, or that’s what they say.

    Can we just not call it autistic?

    I am socially challenged. I am a regular girl. Maybe just like someone in your school. But I’m different. Sometimes I am too impulsive and don’t think before I talk, and sometimes I forget to see if you are interested or not. Sometimes I am successful and sometimes not.

    But don’t judge me by that.

    This is my nisayon. Everyone has theirs, and I am working, taking one thing at a time, slowly slowly. It doesn’t help to scream at me to go faster, just like it doesn’t help to scream at the computer to go faster WHEN IT CAN’T!!!!

    I am learning, always learning.

    I guarantee you, if non-autistic people tried half as hard as I do to make sure that what they did didn’t upset other people or harm them, the world would be alot better off. Please, just remember that I slip up, just like a person with an angry nature slips up and yells, even though they are working on themselves.

    There are many types of autism, anyone on the spectrum just a tiny bit is considered autistic when it’s really it just means they are completely normal just have to work harder on social cues and stuff.

    Why is the world so cruel, why can’t people realize that we work so hard??????

Viewing 11 posts - 1 through 11 (of 11 total)