Diabetes Support Group
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- This topic has 1,924 replies, 78 voices, and was last updated 9 years, 7 months ago by dx3.
September 12, 2010 5:59 am at 5:59 am #979735
rabbi meisels just came out with a very important pamphlet on yom kippur and everyone should have it. just call him and mail in your membership of 36 dollars and he will mail you different stuff throughout the year, its so worth it!!!!September 13, 2010 2:41 am at 2:41 am #979736
i got that pamphlet it was really helpful!!!
my parents and i decided that it’s more important to have my pump at home and i could always come home if i need it….
my question is… how low is too low on yom kippur?? at what point would you break your fast?September 13, 2010 2:48 am at 2:48 am #979737
sorry cofeefan but you really need to ask a rov how low is LOW and when you are allowed to break your fast and how much you can eat. i called rabbi weissmandel ( rabbi meisels knows his number) and found that he was the best and really really knows the halachas and is a mumche in diabetes!!!!! you are allowed to carry your pump to shul cause its a part of you this is the psak from rav chaim kaniefski he is my cousin!!!September 13, 2010 3:08 am at 3:08 am #979738
Cofeefan- mosh3 is right u shld definitely consult a Rav about this but I always find that once I fall low (past the 80 point) I can get very low very quickly! just keep that in mind…September 13, 2010 3:17 am at 3:17 am #979739
i already know how low for my own self i was asking out of curiousity of what others do…. when i get under 70 i force myself to break it (i’m sure people think it’s not hard to eat on yom kippur but for me it is physically PAINFUL i can’t bring myself to do it…like today someone made a comment like “you are so lucky you don’t have to fast” but i wanted to tell them “are you kidding… i wish i could fast it’s really hard not to” i wish people were more sensitive!!!)September 13, 2010 10:39 am at 10:39 am #979740
uch i know exactly what you mean cofeefan, people are either plain stupid or rude cause they really dont think before they open their mouths. i recently had cancer so i write on the yeshiva world blog on cancer survivor stories and we were just talking about how unfortunately people mean to be nice but are not and they want to give advice but it would be better if they kept quiet. at the end the maskana was surround yourself with people who care and understand!!!September 13, 2010 11:12 pm at 11:12 pm #979741
Coffefan- Yes! I know exactly what you mean!!!
That’s how I felt in the beginning with pricking myself and injecting on shabbos..it was a horrible feeling but then i came to terms with it and realized that i got a mitzvah every time i turned on my meter and pricked myself 🙂 I pretty much adapted that same attitude towards fasting although it was REALLY hard in the beginning.
For some people the nisayon is to fast and for others its NOT to fast!September 14, 2010 5:27 am at 5:27 am #979742
Just curious of past experiences; anyone ever had to eat/drink due to high or low BG?September 14, 2010 10:43 am at 10:43 am #979743
of course that is the problem we are talking about. on yom kippur if i go high i just put in more insulin of course that never happens and i try to find out why it happened but usually i go low very low cause i gotta fast and then i need to eat something which i dont like cause its YOM KIPPUR. you know its funny when i go low on tisha b’av and i have to eat it doesnt bother me too much.September 14, 2010 11:57 pm at 11:57 pm #979744
Mosh3- Im not sure how many yom kippurs you’ve gone thru with D prob more than me but this wiill iyh be my 3rd one (ive also fasted 3 Tisha B’avs) and bli ayin hara I have never gotten low enough to have to break my fast.
I start out the fast at a fairly high number (somewhere between 250 and 275 preferably) and as the day progresses I get lower and lower but i dont think i ever got lower than 90! Why do you go so low..its not like your exercising or anything?September 15, 2010 12:57 am at 12:57 am #979745
well now i dont have a problem but when i first started fasting i did not realize i needed to spike up my numbers and so if i dont eat and still get insulin after a while i go low. i do get very thirsty cause i am a boy an daven alot, i got 2 special needs sibling and a mother who had cancer so i daven and cry alot but now i know what to do and dont have that problem.September 15, 2010 2:07 am at 2:07 am #979746
Mosh3- Wow! you seem like a very strong boy! May hashem grant you and your entire family a year of Health, Simcha and Bracha!September 15, 2010 3:55 am at 3:55 am #979747
mosh-wow you(and your whole family) are an inspiration!!!
when i was first diagnosed 9 years ago i never fasted even yom kippur because i wasnt in such good control so everyone (doctor, parents, rabanim etc) felt it was best i wait till i was in better shape. over the years i gained perfect control so there was no longer that reason for me not to so i tried it and i was able to do it bh!!! it’s not easy but i think it’s worth it.. especially yom kippur! i start high too though i get SOOOO thirsty it’s really hard not to drink i put a temporary basal rate of 15% less to keep the numbers stable but by the end it gets low so i sometimes suspend delivery for a while so it will drift back up. im always happy when its over…
but just bringing up a point that i sometimes have troublewith… when i break my fast my body takes time to get back to normal so i sometimes have to bolus a little more for the “breaking meal” because my system is shocked by the carbs but then go too low later at night.. my system gets whacked for a bit.. any suggestions for the AFTER?? we discuss the DURING so much….September 15, 2010 4:48 am at 4:48 am #979748
Coffefan- I have a different issue..mine is that im usually fine after the fast but for the next week or two i cant get my numbers back to normal! I think Rabbi Meisels discussed ur prob in the latest flier that he printed. check it out!September 15, 2010 12:35 pm at 12:35 pm #979749
i don’t see why you have to start as high as 250 or more, just change your basal, rabbi meisels has excel sheet that could help you with that.
actually, it’s not good to fast when you’re so high, you have to be higher than normal, but not that high!!!!September 15, 2010 1:44 pm at 1:44 pm #979750
It’s not advisable to be so high, I try to keep in the 150 range till abt 2 hrs before the end and then I do a correction(if needed). With Lantus I took abt 2/3 of my regular dose and this usually worked out fine.
For the ‘breaking meal’ I increase my basal (stil b4 motzai) and overbolus for everything. If possible I sometimes already bolus a few units 1/2 hr b4 the end to give the insulin a chance to work b4 loading up with carbs. Eating low carb is a great solution, that’s if you can resist the cakes;)September 15, 2010 6:14 pm at 6:14 pm #979751
Remember? Im not on the pump so i dont have that flexibility. If i dont start high enough i might not make it thru the fast since i cant change the basal rate like u guys can… get it?September 15, 2010 7:10 pm at 7:10 pm #979752
can’t you play around with your shots? maybe less units, at different times?September 15, 2010 10:25 pm at 10:25 pm #979753
I take lantus once a day-which is the slow acting insulin, it’s equivilant to ur basal. I only take novolog when I eat or have to correct! There’s nothing I can play around with except the novolog which i dont use on a fast day cuz im not eating.September 15, 2010 11:27 pm at 11:27 pm #979754
ask rabbi meisels, he has the best expierence and will never let you go so high, he’ll find a solution!September 15, 2010 11:54 pm at 11:54 pm #979755
allsgr8- out of curiousity and sorry if i’m being too nosey… why don’t you have a pump? (you dont have to answer if you don’t want to…… i’m being rude sorry…)September 16, 2010 1:48 am at 1:48 am #979756
trala- i really feel fine when im high no thirst or anything and its only for 1 day so i dont think its such a big deal… I prob could survive being only 200 but i dont wanna take such a chance especially with walking back and forth from shul..
Cofeefan- no prob! u cld be nosy. The reason is becuase I keep my diabetes a secret. I was diagnosed at 18 which isnt exactly the best time for s/t like that to become public..know what i mean? So, basically my parents felt that the pump wld be too noticeable..anyway, my doc started me out on shots and then wanted to put me on the pump a couple of months later. By then i was already fine with the shots and wasnt in a rush to get onto the pump… When i get married iy’h (actually engaged!) I’ll iyh switch over to the pump.
Its not that i dont think ill get married if ppl know about it but u know how it is with shidduchim…. 🙂September 16, 2010 3:48 am at 3:48 am #979757
allsgr8 i ttly understand… my pump is really not noticeable it’s wireless and what people DO see looks like a blackberry so i wasnt thinking about “old” pumps when i asked i forgot that people can see them… but i would do the same as you if i were in your situation!!! it’s crazy how many people like me (meaning young sinlge frum girls) have D as you call it.. (i admit i have started to call it that too…=]) i never realized it…. now the question is where are all the young single jewish BOYS with D?????September 16, 2010 4:29 am at 4:29 am #979758
LOL! u crack me up..what type of boy r u looking for? I happen to know one boy with itSeptember 16, 2010 4:34 am at 4:34 am #979759
And it happens to be your relative because Diabetes is genetic.September 16, 2010 4:35 am at 4:35 am #979760
allsgr8, as I mentioned in my previous post when I was on lantus I decrease my dose to abt 2/3 this always worked out fine for me. In fact I’m quite surprised no-one has told you to decrease your latus. I was on shots not too long ago, in fact it’s only my second YK with the pump.
Abt the pump, no-one knows about my D either, the pump makes it much easier to keep it a secret w/o compromising on control. I never take it out and always bolus using the easy-bolus feature. Having to hide my pen under my sleeve and run to the bathroom to take a shot was much more obvious than just pressing a few buttons through my clothing. Never mind weddings, and shabbos get-togethers, I hardly ever took along my pens and always ended up ski-high, and if I didn’t make it home on time to take my latus dose… I’m sure you’ve BTDT;)September 16, 2010 5:00 am at 5:00 am #979761
health, 80% of Type1’s have no family members with the disease.September 16, 2010 1:33 pm at 1:33 pm #979762
lol allsgr8 it’s just funny to me that i never heard a biy having it it’s a bit weird to me……
health-i’m not sure ALL type one diabetic cases are genetic though i did hear that theory…. i happen to be the only one in my (quuite large) extended family who has it… and i’m talking about from generations back. though i do know a 9 year old girl who’s father has it (hey another man with it…….. i forgot about him lol) so that is a proof to your theory as well =)September 16, 2010 10:50 pm at 10:50 pm #979763
Health- OMG! u are so insensitive! I cant believe ur saying that! Well, i shldnt b 2 surprised based on ur previous posts but i thought u learned a lesson already.
NO! He happens not to be realated to me in any way! He is my friend’s, friend’s brother. And besides, there is not one person in my immediate or extended family with either type 1 or type 2! I’m not gonna go thru this with u again but Type 1 diabetes has not been PROVEN to be genetic!
forever1- BTDT are just the right words! 🙂 I dunno i cant see my parents agreeing to the pump it at this point… wtvr!
Coffefan- lol why dont u think boys get it? Seriously though, what type of boy r u looking for?
What about all of the other 20 yr olds..what r u all looking for? would u marry a boy with type 1?September 16, 2010 11:55 pm at 11:55 pm #979764
i dont doub there are boys with diabetes but i find it funny that we’re all girls here…..i am looking for a working boy who is kovia itim (ie: a shuir etc)someone who is “with it….” i don’t know if i would marry a boy with type one…. do you think it would make the chances for my children to have it if BOTH parents have it?? if there is no chance then i would have NO PROBLEM marrying someone with it… cuz i know that there is nothing wrong with it i just wouldn’t want to bring that on my child… am i making any sense????September 17, 2010 1:45 am at 1:45 am #979765
yes! u make lots of sense! I dont either know what i wld do…there is some research regarding the percentage of a chance that the kids will get the disease if wither one parent has it or if both etc.. believe it or not there is a bigger chance of a child developing D if the father has it rather than if the mom does…Weird no?
My bro in law happens to know a boy with it (there we go! more boys!) and he thought it wld be a good shidduch for me but that was right after I was diagnosed and my parents were VERY skeptical about me marrying another D. Today however, I think my parents would consider..
Anyway, back to that shidduch, so this boy isnt really that type hes more of a learning boy. O well!September 17, 2010 2:18 am at 2:18 am #979766simchallthetimeMember
Btw the chances are very high of having children with D if both parents have it! If only one parent, it’s like a small(er) (10% approx)chanceSeptember 17, 2010 3:30 am at 3:30 am #979767
Simchallthetime- I wldnt say VERY high but rather “higher than the general population.”
There’s a lot of conflicting info out there but in general (from the american diabetes association)
if the father has it theres a 1 in 17 chance of kids getting it
if the mother has it- theres a 1 in 25 of kids getting it
If both have it- not sure! i think 1 in 10 but dont quote me
But then again, there’s more to it than genetics and all this is not proven info as far as i know!
Besides of course that hashem runs the world!!!September 17, 2010 5:15 am at 5:15 am #979768rebbitzenMember
i was told not to marry someone with diabetes…but i dunno! i’m looking for a learning boy!!!!! any ideas?September 19, 2010 1:41 am at 1:41 am #979769rebbitzenMember
its so annoying! i wanted to make it thru the fast..and of course i went low twice. and had to have winkies! its so annoying!!!!!! i felt gross!September 19, 2010 2:03 am at 2:03 am #979770
oysh i’m so sorry rebbitzen… i know it’s sooooo hard on yom kippur!!! i messed myself up because when i tested right before the fast it was 301 so i gave correction but i forgot that it was right after the seuda so i drank ,some juice right before but i still had too much insulin in my system i was so scared… it sropped really quickly i had to suspend all insulin delivery for 4 hours (not all at once but 4 hrs total) at night then jst did a temp basal for rest of day.. at the very end it was 71 but at that point it was ok to wait till havdala… it was very nerve wracking i’m happy it’s over!! (now lets see how long it takes to get back to normal…)September 21, 2010 2:58 am at 2:58 am #979772
I mentioned on page 1 -half of type 1’s have a diabetic gene.September 21, 2010 3:32 am at 3:32 am #979773
That doesn’t mean that someone who I happen to know with diabetes needs to be related to me just because we both have the same condition!!!September 21, 2010 6:36 am at 6:36 am #979775
Health, can you please provide the source of your statement? The following is from the JDRF website. Please note the second paragraph where it states that only 5% people are at risk if a parent, sibling, or child has the disease.
Is type 1 diabetes hereditary?
Researchers are still trying to get a clear picture about how genes and environmental factors interact to determine a person’s risk of developing type 1 diabetes. Forty percent of everyone in the United States carries one or more of the HLA genes (human leukocyte antigen) which lead to increased risk of type 1 diabetes. To be at increased risk, however, an individual needs two copies of these genes, one from each parent.
One in 400-500 people in the general population develops type 1 diabetes, but 1 in 20 (5 percent) people are at risk if a parent, sibling, or child has the disease. Research has shown, however, that genes don’t tell the whole story, and suggests that environmental factors (which are not yet fully known) play a role as well.
JDRF is currently funding a study that will follow more than 7,000 newborns at increased genetic risk of developing diabetes and will collect vast amounts of data on potential environmental factors over a 15-year period to see which ones are associated with a greater or lesser risk of developing diabetesSeptember 22, 2010 5:08 am at 5:08 am #979779
here is my opinion on this whether anyone wants to hear it or not…. we will never agree whether it is genetic or not because there is NO way we will EVER know… Hashem decides who gets it not science, not genes, not anyone but the Creator of everything Himself!!! so can we please stop argueing (right after Yom Kippur i might add…) and move onto something that can actually help us? because even if we can agree on if it is hereditary or not.. it won’t help anything! please everyone can we move on???September 22, 2010 6:12 am at 6:12 am #979781
Forever 1 – This is from the website called Genetic Health. There are many articles on Diabetes that write the same or similar things.
“If you or someone in your family has Type 1 diabetes, you may wonder if other family members are at risk. It turns out that Type 1 diabetes does often run in families. In fact, researchers have found nearly 20 different genes that can affect your risk for developing diabetes.
Two of the best studied genes in Type 1 diabetes are the HLA region and the insulin gene, etc…”September 22, 2010 6:49 am at 6:49 am #979782
cofeefan, you’re A1!!September 22, 2010 1:36 pm at 1:36 pm #979783
Thanks for the reference. They do state in the end of the article that the inheritance patterns still reamain complicated. I am no expert in genes but if you search all websites out there it all states a no grader than a 8% risk for a child of a T1 to get diabetes.September 22, 2010 3:05 pm at 3:05 pm #979784
why are you people still arguing???? you know youre not gonna come to an agreement!!! PLEASE move on!!September 22, 2010 3:11 pm at 3:11 pm #979785
Forever 1 -There are subtypes that have a much higher risk. From the ADA website -diabetes.org – “There is an exception to these numbers. About 1 in every 7 people with type 1 diabetes has a condition called type 2 polyglandular autoimmune syndrome.
In addition to having diabetes, these people also have thyroid disease and a poorly working adrenal gland. Some also have other immune system disorders. If you have this syndrome, your child’s risk of getting the syndrome including type 1 diabetes is 1 in 2.”September 22, 2010 4:32 pm at 4:32 pm #979786
So we conclude that 14% of type 1s have this condition and their children have a 50% chance of developing Type 1. In other words for the other 86% type 1s, their children only have a 5-8% chance of developing the desease. /?September 22, 2010 5:56 pm at 5:56 pm #979787
coffefan- ur right! We’ll never agree! Thanks
Have a great yom tov everyone!September 22, 2010 8:47 pm at 8:47 pm #979788
Forever 1 -I didn’t know you wanted the statistics for everyone.
Here is the first part of that article from the ADA:
“In general, if you are a man with type 1 diabetes, the odds of your child getting diabetes are 1 in 17. If you are a woman with type 1 diabetes and your child was born before you were 25, your child’s risk is 1 in 25; if your child was born after you turned 25, your child’s risk is 1 in 100.
Your child’s risk is doubled if you developed diabetes before age 11. If both you and your partner have type 1 diabetes, the risk is between 1 in 10 and 1 in 4.”September 26, 2010 12:33 am at 12:33 am #979789
my statistic..100% of all people with diabetes got it because the Ribono Shel Olam decided that they should have it… PLAIN AND SIMPLE!!!!September 26, 2010 2:01 am at 2:01 am #979790
On the button Cofeefan!
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