Forum Replies Created
-
Posts
-
alls – Thanks. I am think that i will wait a bit and see what my daughter will want when she is ready for a new pump (when insurance allows us to renew it).
coffee – thanks. i want to get it for my daughter, but i don’t think that she will put inon her stomach. i am hoping that that it will work on her leg and not show through her uniform.
hi coffee – yes it does give me chizuk to give others chizuk. I also get to see other situations and learn from them. we actually went for shabbos to another family who has a child with “D” and the kids really got to know each other, it was a great experience.
jewish – it is sad to think that “D” is a problem. it is a condition that has to be taken care of, and if not then… I myself ever felt restricted from it, and B”H i am married with children. My wife is there for me and always there to help.
does anybody have the omnipod, i want to know wherea girl can wear the pod so that it does not show?
Also what do you do on shabbos about carrying the pdm?
Coffee – I am so happy for you and I am proud of you for trying your best.
I do know someone that went on a very low carb diet and ate a lot of protein (not too much because the side effect of protein breakdown is ketone bodies), and it really helped keep things under control. Also we do not want to have macrosomnia (a large baby) which is the result of a lot of sugar in the blood.
hope everything is well and i cant wait to hear the good news.
Lately we have been in touch with a few other families who have children recently diagnosed with “D”. I recently went down to the hospital to meet with a father of a newly diagnosed young child. It is so hard to see others suffer though it.
be well and get some rest.
hi, it has been a long time since the last post. i just want to touch base ans say that we are surviving here. the kids are older and now the big issue is them eating and later we find out when the number on the screen is …
First of all mazel tov.
I must say that for all of the simchas in my family we have used Esther Levy and I must say that she is amazing!!!
Coffee- MAZEL TOV
we are so happy for you. you see we all do it.
you should be zoche to build a bais ne’eman b’yisroel, and the D should never get in the way. VE’NOMAR…..
life- happy for you that you are open with the D, it makes things so much easier. welcome aboard, and maybe you will also give us chizuk.
just saying hi. sorry that i have been away.
just had an amazing FWD event for the kids and it was amazing.
the kids loved it and it was nice for the parents too.
i just switched to the naomi berrie diabetes center. so far we are happy with them.
oomis – yep you are right
i have been pretty good so far. i am hoping to lose a few pounds before peasach arrives when i live on matzoh and fattening things (like chocolate mmmmm)
princess – that i do not know
princess – sometimes wine makes be go down, but this year the opposite happened. i think that wine makes you go in whatever direction you are currently going faster.
oomis – tell me about it. that is why i donated most of my nosh to yeshiva
oomis – i agree.
i had so many cards on purim…
and the wine shot me up into the 400s
well today things are back on tract. got the numbers down over night and we are ready to go
a freilichen shushan purim
A freilichen Purim to everyone
may you all have an uplifting purim (but not the numbers)
alls – congratulations !!!!!!!!!!!!!!!
princess – you are right about that, but today after making sure i was bolusing correctly i ended up at 60 with 9.4 units on board. help. so guess what I ATE MORE!!!
lol, help, lol
alls – i wish you were right
i am getting nervous i have a weak spot for hamantoshen, what do i do the #s and the pounds will both go up!
princess – thanks. it is very difficult when one day its good and then you are out of control for the next few days.
cofee- congrats. keep up the good work.
hopefully one day we wont have to worry about D anymore.
metooo – i was there for both i guess
metoo – it was very good, i enjoyed the speeches very much.
i think that i overate, but i did bolus a lot
where you there?
alls- i guess i can try that.
yes i was worried about my a1c being higher and B”H it wasn’t.
I am trying to get it below 7 and so far i can’t
alls – I did measure out tree cups exactly. not only that both of my kids were in the 40s also. what a night. we were all the same number at the same time. then in the middle of the night i was 38. well i guess i had another supper at 3:00am. lol
I just got my a1c and its 7.1. i am trying to get it below 7 but i am not complaining.
meetoo – only when i do active exercise do i go down, not when i am doing regular activity.
the other day i had 3 cups of pasta at 45 carbs a cup, and after a few hours i was 46. Help. how many carbs are there in a cup of cooked pasta?
hi everybody sorry i haven’t been on for a while.
sweet – mazel tov on the wedding. how was the week of sheva brachos with the numbers?
i know by my sheva berachas day and night was fused into one and i wasn’t on the pump yet (my wife made me get onto the pump).
exercising actually keeps me in range for a few days.
my son wants to always to be low so that he can drink juice. sometimes he wants me to retest him so that we can try to get a low number. lol
silver – i am happy that you picked medtronic that is what i have and i am very happy with it. i hope things continue going well.
rosh – well good for you. i had the same attitude about the D and i am happy that i did.
we did ask about shabbos and we were told that we can do everything except changing the battery (makeh bepatish). we do try to make a shinu if we can but basically we do everything regular.
princess – i was in the 300’s today for most of the day. i am thinking of raising my carb ratio. what do you say?
EDITED
hello Rosh! Welcome to our “exclusive” club. I am a father of two D kids. (I am also D) My daughter is in first grade and she is on the pump. Once the kids are on the pump they can do so much themselves. Tell the school to TRUST her. If she needs to call home.. but she will very soon be able to do so much herself because the pump calculates it all. It’ll also be 1000x easier for her if her friends know. They’ll get used to it and wont think twice. If its a secret it can be a real burden – it’s too much for the kids. Also do you know about ForWarD/ Rabbi Meisels’ organization.
Coffee,Princess hi ppls! 😉
regarding shabbos the biggest change i will do is use my pinky instead of my thumb or pointer.
i have used the cgm for a little and then stopped because every time i pulled out the needle in the middle i had a geyser of blood coming out. furthermore after a day and a half it started to burn.
regarding the medtonic pump i love it because it is so much simpler to use and it does have an audio bolus that i use a lot.
whatever you choose csilver will be good. all the pumps basically work the same.
csilver – i have a medtronic pump and my kids have an animas pump. the medtronic does not have a database nor do they have a remote. however the animas does have a database but only in the meter not in the pump. the good thing is that the meter works as a remote. hope this helps
its 12:00 right now and BOTH of my kids are 47 HELP!!!!
Now that yom tov is over and the new zman starts tomorrow i hope to get ny numbers under control. i am now 259. i hope i do not have to take another a1c within 3 months.
gata go buy more juice we are going through it way too much.
well it is bain hazmanim, and that means more time, which means more food, which means HIGHER NUMBERS. so i was basically floating in the 200’s today. help!!!!!
a day after the fast is when i got a really bad headache. but after the fast itself i was ok. this was a bit unusual.
hi there everybody
i did it. i fasted the whole yom kippur. the only hard part was at night when i was in the 300’s and i felt like i was dehydrating until i got my # to about 180. my goal was to stay around the 180 mark. i basically did and in the end i ended the fast with a 122
huuay for me
sorry i can’t post as often i am busy with getting into the school thing. you know all the schedules and stuff like that
Yes I did try to fast but then about half way through I was 63. Oh
Well I will try to Adjust my basal so that yom kippur will be better.
hi all,
just dropping in to say hi, and that i still exist. numbers are doing great, plus i pretty much got my basal down to almost perfection and i have been losing weight just by eating regular.
yoel- welcome aboard!!
first of all kudos to you for putting you thoughts into writting on this forum. your words are inspiring, keep up the good work. as you know life is challenging, yet you seem to be doing a wonderful job at it.
i really never fasted until recently, this is after about 15 years of trying to perfect my basal so that i shouldn’d go too high and dehydrate nor too low so that i should pass out.
(this yr tisha baav i didn’t make it) many times on yom kippur i have eaten and people have seen me. i usually tell them that it’s medical and i have to eat (even though I look perfectly “healthy”). (there is somebody where I daven who is hooked up on Iv the whole 26 hours of yom kippur every year). What i try to do, (if I have to eat) is to eat less that a kezayis, an olive size, (28grams) evey nine minutes (usually i wait a little longer). maybe ask the rav if you can use his room for privacy. remember that if you or me or anyone has to eat- it is a MITZVAH and that is our way of serving Hashem.
you are doing great and keep it up!
Princess- you should become a writter, or poet. you expressed yourself beautifully.
Do any of you guys use emla Numbing cream) before doing your set?
zen- wow. well good for you for getting things under control.
cofee- sorry to hear that you were rollercoasting. hope things are under control now.
I was doing well fasting until about 4:30 in the afternoon. About 2:30 I was 80 so i downgraded my basal. At 4:30 I was 64. too bad I had to break the fast. After eating and drinking I didn’t eat anything till the end. B”H no ketones.
Princess- nice poem
Welcome zen3344- wow what a story. Are now considered type 1 and type 2 or are now only type1?
Well good for you for getting your life back in shape.
Sweet – that is an interesting thing to continue to eat meat. I do eat pasts and more pasta and more pasta….. But I measure one cup to be forty five cabs. Pizza is fifty a slice but I try to dual wave or combo bolus because of the fat.
Princess- I will try to hang in there. Thanks for the encouragement.
I don’t mind the milk part so much BUT my body doesn’t do to well with it. It’s a good thing that I like vegetables.
You know these 9 days are not helping me keep things as smooth as i want them to in regard to my #’s. I think the cheese is affecting the rate of absortion or somthing like that.
The real story seems to be not what is being written. I think there is something missing here. I just have this feeling.
Back to that story in Africa I think that it doesn’t make sense. I can’t be that you can’t get insulin within a week to this person even if they don’t have it.
No I haven’t, but in that area of the world anything is possible.
Sweet- I had the same thing with pita. It was labeled 30 grams per pita when I was around 56 carbs for each one.
You may loose weight by having ketones but I think there is a better way…..
It pays to read the labels my friends
cofee- yeh you are right. i was famished after swimming and practically ate the cabinet too.
i did eat about 5-6 cookies bebore swimming but an hour later i was slightly low, and i felt shaky so i ate another 5-6 cookies. i ended up in the 200’s.
just cant get it right, but we worked it out in the end.
Trala- keep it up, I mean keep it down.
The truth is I didn’t really fast until I sort of perfected my basal rate. It really was because I tested every two hours on fasts that I was able to adjust my basal. If I was a little low I would suspend until it came up. So mostly on all fasts I try till chatzos, and on tisha b’av I try for the whole thing. On yom kippur I usually get through without eating. If I need to eat I eat less than the shuir every nine minutes. The past yom kippurs I did the whole thing but I felt the ketones after.
I finally went swimming this weekend so I tested before and I was 327. I gave myself a partial correction and ONE HOUR LATER I was 135 with a ton on board. Help!!
i fasted until minchah. after that i had a small breakfast/lunch with a lot of water. then had a small supper and ate with everybody else after the fast. i do the same by tisha be’av. i wait till at least after chatzos.
Princess- keep on taking the insulin and if you need add a drop more insulin helps you.
You are right for feeling how can you write here when there is a tragedy that went on. The past few days I have been out of control bec. this story made me sick. I am still trying to get over it. I was 64 today and an hour later after drinking almost two cups of juice I was 65!!!!!! I had a ton of insulin on board. I think I have to lower my carb ratio by one.
Tralala – I didn’t know that you wrote a second article. Can you send it to me (us). Thanks
Hello. Should I just say hi to myself. Where is everybody?
Princess- no I didn’t try it yet. I am waiting but I don’t know for what.
My head wasn’t in the carb thing today bec. Of that boy I was a little out of wack.
DRIED APRICOTS!!!!! – i go flying high!
any dried fruit makes me fly. (besides i got a sreaming from the dr. for eating dried fruit)
ok by the wey…
40 grams = 22 carbs.
thanks everybody adout the sensor tips. i will try to freeze my leg before putting in the sensor.lol
when i was in camp for a shabbos with my class i would get up a 1/2 an hour before anyone else so that noone would realize. otherwise i had the time to bolus before (like prebolusing when i had a small break)