Forum Replies Created
allsgr8 i ttly understand… my pump is really not noticeable it’s wireless and what people DO see looks like a blackberry so i wasnt thinking about “old” pumps when i asked i forgot that people can see them… but i would do the same as you if i were in your situation!!! it’s crazy how many people like me (meaning young sinlge frum girls) have D as you call it.. (i admit i have started to call it that too…=]) i never realized it…. now the question is where are all the young single jewish BOYS with D?????
allsgr8- out of curiousity and sorry if i’m being too nosey… why don’t you have a pump? (you dont have to answer if you don’t want to…… i’m being rude sorry…)
when i babysit for my nieces and nephews when i finally get them into bed after bath teeth brushing etc i always like to ask them what their best part of the day was and why… i like it because they think about their day before they go to sleep and i get to hear about their day and it goes for any age… (younger kids will tell me about a yummy snack or fun game while the older ones will tell me about a good mark on a test or a new friend etc)
i plan IYH to do this with my kids! (i know wasn’t really an answer to the question….. sorry)
mosh-wow you(and your whole family) are an inspiration!!!
when i was first diagnosed 9 years ago i never fasted even yom kippur because i wasnt in such good control so everyone (doctor, parents, rabanim etc) felt it was best i wait till i was in better shape. over the years i gained perfect control so there was no longer that reason for me not to so i tried it and i was able to do it bh!!! it’s not easy but i think it’s worth it.. especially yom kippur! i start high too though i get SOOOO thirsty it’s really hard not to drink i put a temporary basal rate of 15% less to keep the numbers stable but by the end it gets low so i sometimes suspend delivery for a while so it will drift back up. im always happy when its over…
but just bringing up a point that i sometimes have troublewith… when i break my fast my body takes time to get back to normal so i sometimes have to bolus a little more for the “breaking meal” because my system is shocked by the carbs but then go too low later at night.. my system gets whacked for a bit.. any suggestions for the AFTER?? we discuss the DURING so much….
i already know how low for my own self i was asking out of curiousity of what others do…. when i get under 70 i force myself to break it (i’m sure people think it’s not hard to eat on yom kippur but for me it is physically PAINFUL i can’t bring myself to do it…like today someone made a comment like “you are so lucky you don’t have to fast” but i wanted to tell them “are you kidding… i wish i could fast it’s really hard not to” i wish people were more sensitive!!!)
i got that pamphlet it was really helpful!!!
my parents and i decided that it’s more important to have my pump at home and i could always come home if i need it….
my question is… how low is too low on yom kippur?? at what point would you break your fast?
i agree that there is a massive problem ( i work in a boys school and you wouldn’t believe the way some mothers come to pick up their sons….) but i also agree that rebuking strangers in public is not the answer because it can sometimes have the complete opposite effect than desired….. maybe if someone people respected said something about it it could help….
is there an email adress where i could reach rabbi meisels? (i don’t want to call i’d much rather email…)
i’m really nervous for yom kippour for the same reasons… i always start off SOOO thirsty and nauseous but as the day goes on i end up fine and drifting a bit low (but because it’s “shorter” (in that the actual day is shorter and its over by 7ish) than Tisha baav it’s easier in a way. what i’m nervous abt is my Pump. bec it’s wireless (i have the omnipod..) i don’t know whether i shoukld take it to shul or leave it home cuz i cant carry it and prob will need it in both places…idk what to do!
allsgr8- lucky you… i get sooooo thirsty when it goes even a bit over 200 as well as really cranky and moody (everyone in my house knows…. she’s cranky must be high….) but worse is lows because (as you all prob know all too well…) i get so shaky, sweaty, dizzy and starving even after i just ate it’s horrible!!! thats why i try so hard to stay in control if nothing else than not to feel gross..
has anyone here ever donated blood? i really want to donate but i heard that they don’t always accept from diabetics…. i emailed my doc and she said as far as she’s concerned there is no medical reason for me not to if they allow it… any opinions?
simcha- i definately dont!! chocolate is my best friend and pasta is basically my sister….. you just have to know how to bolus for it!! (and of course all in moderation……)
simcha- i have that all the time i love it because it saves me from pricking myself again…. lol
reb- i feel so bad for u! must be a real challenge!!!!
i know my doc has told me that there is a good chance of me having thyroid issues bec of diabetes (as well as the fact that it heavily runs in my family…..)
mosh3- i ttly 100% agree with you! in this day and age, especially in shidduchim everyone thinks they are perfect and deserve perfect in return which is why i am so afraid when it comes to telling boys about the diabetes, because in their eyes it is a chisoron when it is 100000000% not!!! people don’t understand it (as i didnt when i was first diagnosed…..)and therefore they don’t know that it is really not a big deal. ( i also think people mix up the two types of diabetes so they might think i brought this onto myself which i most definatly did not….or they could be afraid of passing it down to children which is also very untrue….) i wish we lived in a world where this could be a very “non issue issue.” but society today is scared of the unkown which is why people view it as a negetive. which in turn is why i don’t need every boy knowing about it, even though i am in NO WAY ashamed of it! but in a parsha that already is so into their needs of the “perfect” girl, i don’t want another “imperfecttion” against me… it makes me sick to think of it like that but it’s the way it is!
BOSD: i can’t speak for anyone else ut i for one did not think you were negative….. we’re all friends here!! what is SOS tasis? i never heard of it! i like your idea about saying a rov told not to tell about the diabetes it’s a good idea thanks! (btw i HATE when BSLs go up after correcting.. it is the most annoying thing!!!)
allsgr8- i think your attitude towards life is really amazing and i relly have a lot to learn from you so thank you for being so positive!! you make very good points and it really helps!
simchaallthetime-i agree with you about the support i for one am sooooo much happier to know other “people” who 100% understand me and how i feel!!
lol BOSD- when you find some advice let me know!!!!!!!! we’re all in this together i guess!! i honestly don’t know what to tell you because i am going through that same thing myself! btw what do you do about telling the boy before a date?
health- i’m sorry if i sounded harsh i appreciate the advice!! i actually stopped coffee for a few days recently just because of time etc and it didn’t really make a difference but it’s an interesting theory! thanks for trying! =)
health- what did we discuss abt making generalizations??? coffee happens to be like any other food for me.. as long as i bolus properly for the milk (i use splenda so no carbs in that) there is no affect on my sugars….. but thanks for caring =)
BOSD-while i can’t exactly feel your frustrations with the shidduch world since i have only been in it for a few years i certinly understand when you say you are fed up with diabetes… i have it for 9 years and i can’t tell you how many times i feel like saying.. “that’s it i don’t care” and just giving up! there have been times (and i’m embarassed to admit it) that i ate whatever i want and stopped giving insulin because i really didn’t care… (that lasted about 2 days because feeling horrible wasn’t worth it….) but i know exactly how it feels and it’s frustrating… and my doctor said it’s COMPLETELY normal! when someone has a chronic disease it’s only expected that they feel like whats the use… as long as we realize that it’s something that has to be done and get back on track…. i jst think that of all the terrible nisyonos Hashem could give BH this is something i can deal with so then i get grateful…..
wow 52 is really low… do you know what caused it to drop so low?
how are you feeling now?
welcome BOSD… it’s good to “meet” new people. the best way to join the conversation is to tell us about yourself, how you feel about your diabetes, any struggles you have, any helpful hints that we can benefit from etc…. looking forward to hearing from you…
thanks you are both right i prob need a lot less insulin now… i emailed my doc i jst have to wait… (it gets me very annoyed that i have to wait so long for a reply but thats a different story…) until i hear from her i’m gonna try a snack or juice before bed i don’t like to do that really because it’s not so healthy but i’d rather get this issue resolved…. thanks for your help.. i never knew anyone else my age (only a lot younger…) that has diabetes so it’s nice to get opinions from people who know exactly how it is!
allsgr8- thats what i do i swim 3 times a week for 30 minutes and the days i dont swim i do the tredmil for 40 minutes. my basals r really low at night now.. i disconnect my pump for 30 min after (and for the time i exercise) ad drink juice before and it’s not helping! i would switch back to the morning but i am starting work again so it doesnt fit into my schedule like that.. and i don’t want to not exercise at all ( i lost almost 10 pounds over the summer….)
ok so here is my new issue…. i changed my exercising from mornings to nights and now i wake up with lows EVERY night… i changed my basal rates and even go to bed with a highs because i know it will drop but without fail every “morning” at around 4-6 am i wake up with BSLs in the 60s or less!!! my doc has told me that exercise effect the blood sugar a few hours after exercise and we had it figured out for when i do exercise in he mornings ( i wouldn’t bolus as much for lunch etc…..) and so i did all theh changings for night but it won’t work i keep having lows and i ‘m tired of it…(and literally tired because i can’t fall back to sleep afterwards….) i emailed my doc but it will take her a while to get back to me……..any suggestions on how to fix it??????
i go every 3 months like she tells me to (i have to make appointments 6 months in advance so i have 2 appointments set up always……)
i never call her for advice because she never calls back i am really frustrated about that thats the one thing i dont like about my doctor. if i need her i email her and she gets back to me in like 3 days so if theres ever an emergency i’m basically on my own…..
i think you should see your doctor just to make sure all is ok in general! i go every 3 months religiously….
i think about what you said about a lot of work for one little hormone all the time. to me it shows the Wonders of Hashem because it takes us so much longer and more work to do what Hashem does in a tiny drop and it makes me appreciate when little things go right when we don’t even think twice about it…it’s really amazing!!!
i’ve had that before when i was sick… it’s a horrible feeling i’m sorry!! stay calm! maybe check for keatones. the problem is that once the body registers that there is insulin there it will absorb it all at once so don’t keep giving full correction and be ready for it to drop low…. what i always do is call my doctors… diabetes doc to ask how to get it down safely (because every time is different for me…) and my regular doctor because i know i am sick and i ALWAYS right.. diabetics have a way of knowning their body… i know its frustrating i’m sorry i can’t be of real help! hope you feel better! keepp me posted!
sounds perfect! thanks so much!
i agree i don’t like seeing the pictures at all
i don’t know but i like that idea…. keep me posted on which
one(s) to say and i’m in!
i ended up not telling him because during the date i realized that he is not for me so there was no point in telling him when i knew it wasn’t going to go further. but thanks everyone for their advice! i feel better for the next one!!
health… i like that idea i just don’t want him to think i’m tricking him or something…. i don’t know how he will feel about me saying sokmething like that but it’s a great suggestion thank you!
mosh- i really like that idea i think that’s what i’ll do because if he reacts badly i don’t have to mention that i have it i cld jst be curious… but what if he is fine with that (which i hope he will be…) i should just say.. “oh because i have it”? and btw thank you for telling me about the people u know i have always been nervous abt the children aspect and it makes me feel better to hear what you said so thank you!!
should i just tell him the story of how i was diagnosed without anything before? i am really nervous…
so i have been dating this guy and it has come to the third date and it’s probably time for me to tell him about my diabetes…. never told anyone (a date that is….) what am i supposed to say? “oh btw i have diabetes”? and WHEN do i say it? meaning in the beginning of the date, middle or end? i’m really nervous…. anyone have any advice????? thanks
absolutely!! BH you were ok!
what do you all do when you have a low? meaning what do you eat/drink? how much?
wow that is really scary… lowest i got was on purim right after i was diagnosed i was 12 so i wanted to eat wtvr i wanted and just kept injecting myself (this was b4 i got the pump…) and it got way too low too fast and i had trouble getting it back up… from then on i learned to be more careful!
allsgr8- i’m so curious to know what happened! how long ago was this? what did you do? did you go the hospital? was it from hypo or hyper? (if i am being too nosey you don’t have to answer… i’m sorry!)
forever1- my mother will be happy to know abt the dishes….. did you try rubbing cocoa butter on the bruises? it’s supposed to help with those types of things… btw what sensor do you have? i’m looking into getting one….
rebetzin-wow that’s low…. the lowest i’ve gone was 33. what happened when you went so low? how did you get it back up?
all i know about diabetics and feet is that when someone chas vishalom don’t take care of their sugar levels the nerve endings in the feet and toes are affected in a negative way i know there are also other issues with the feet but not so clear exactly what they are. ll i know for sure is that every time i go to the doctor she checks my feet and is always happy with what she sees BH! the best way to prevent the problems is to keep sugar levels in good range i think! good qustion though i never really thought about it!
wow that is really cool i am so excited to try doing that thanks!!
i’m wondering if anyone else has little black “holes” on their fingers where they test their sugars. i have millions of them even though i rate fingers. they look like dots… anyone know what i’m talking about? any suggestions how to get rid of them?
allsg8- i find that the nutrtion facts are usually fine. my pump has a feature that tells me how many carbs are in a lot of food, like fruits, vegetables, beans, rice, etc and i go by that very often and my sugars are normally fine! how do you calculate carbs in a whole recipe? sounds very interesting!!
for me i have the biggest problem with the homemade things because there are no nutrition facts so i can’t be sure how many carbs there are there so i have to estimate. when i eat a piece of cake or a cookie that has a label it always is “easier” to give insulin. my mother makes everything with splenda for me. and lucky for me i dont like “real sugar” as allsg8 put it because then it’s one less thing i’m tempted to eat!
allsr8- i know the feeling! it gets really hard sometimes espcially for me on shabbos when everyone else is eating anything they want! what i do it take a TINY piece to feel like i am eating it (it’s different because i am on the pump i have more “freedom”) and just bolus for it! i can’t do so m uch of it because it messes up my sugars but i hate feeling restricted by my diabetes so i give myself some more “breathing room” sometimes. it seems to work for me! just keep reminding yourself that in 20-30 years when you IYH don’t have any complications from diabetes it’ll be well worth it!!
i go to a doctor who SPECIALIZES in diabetes and knows A LOT more than you do. someone who has been in the profession for over 30 years and is the best in the city, so please i am begging you to STOP telling us what to do!! i feel like i am getting no where with this so from now on i am gonna just ignore what you say ok?
you didn’t compare you say things that make it seem as if you know everything there is to know about diabetes and i was simply pointing out that you can’t know everything unless you live with it like i (and so many others) do.
a student does not compare to living and breathing diabetes 24/7 sorry
health- what is your job?
health- being that you are not a diabeteic, please stop telling us what to do! i know you probably mean well and i might be over sensitive about it and reading it the wrong way but your comments seem a bit harsh.. i have had diabetes since i was 11 years old (over 9 years..) and have always been 20 pounds over my “ideal weight range” as you put it, and have been in COMPLETE and TOTAL control the entire time. so unless you have diabetes yourself or are a specialist i would appreciate if you didn’t make generalizations regarding weight. again i am probably over reacting and i am SURE you only mean well. yes i do know i should weigh less but it is very hard for me to lose weight with my diabetes. i eat right, do not eat junk food and exercise but there are a lot of other factors as well and i have discussed it with my doctor. i understand your points but you can’t ever fully understand unless you are in the shoes (and i hope you or anyone else never is…) thank you and i’m sorry again if i over reacted!!
health… do you have diabetes?
personally i don’y change my lancet too often even though i know i should i just keep putting it off saying “i’ll do it next time…” but then i don’t.
i have type one and i am not skinny (i’m not obese either….) it always makes me feel bad when people tell me i shoul lose weight because of my diabetes when i am in PERFECT control despite my weight. it also bothers me how people don’t understand the difference between the types. i’ve gotten comments like “well your diabetes would go away if you dropped a couple of pounds…” it really hurts when people make such comments so maybe people here should try to be more sensitive because this is supposed to be a place where we can be ourselves about our “cpndition” and not be told what is and isn’t “right”
as far as telling people in general… i was in 6th grade when i was diagnosned and theni only told my friends and was very secretive about it but i got tired of that so when i went into high school i was open about it (also because i got a pump the summer before high school and i wore it on my skirt and i got tired of people telling me to put my cell phone away so i just told them the truth…)
rebetzin- i’m sorry about the date but you are one step closer…. next time why not eat a few winkies before rather than switch the basals? that way it brings it up without making it too high?….i never went to any shabbatons though Rabbi Meisels has been trying to get me to go…. it’s not my thing…
allsgr8- i wish there was a way we could really get the names for us to daven for but i guess we’ll have to do with the usernames for now!
forever1- sometimes it does show i have learned over time which spots r better and what to wear when it is in the badf spots. i didn’t use my thigh a lot either so i was worried to put the “pod” there but it was really ok.. my BSLs were really good i though it would be a problem too but BH ut worked out great and it didn’t hurt as much as i thought it would. the biggest problem i have when it is there is that is bothers me when i sleep sometimes but again it is a matter of getting used to it. anything new has it’s pros and cons.
yoss11- i had that problem when i went on school shabbos with my school.. it’s a matter of trial and error you estimate how many carbs you think it would be and give insulin according to that.. if BSLs r a little high you know why and you correct it later on. my philosophy is that it’s better to be too high and correct than to be too low. it might not work for everyone but it’s what works for me! my problem is always carrying my things with me if there was no eruv but BH it always seemed to work out!
or and as far as endocronogist (spelling?) i use dr. elizabeth wallach in mount sini medical center in manhattan. she is great! she is technically a pediatric doctor but she takes people until 22 i think