Forum Replies Created
dx3- i have the omnipod and LOOOOVEEE it!!! i wear it on my stomach and it doesnt show (except now when im expecting, some places shows up so i just put it in less noticeable spots…) i also wear it on my lower back and it doesnt show at all. i know two people who wear it on their leg but i didnt like it there… as far as the PDM, i rarely go out shabbos but when i do i take insulin before leaving and leave it at home, though my husband says there is no prob if i wanted to carry it because its for my health, but thats his opinion i wouldnt pasken for anyone else…
Dx3- thanks for the well wishes… BH its gotten easier- though some days (like today…) are horrible D days!!! I recently went to my Endo and my A1c was 6.1!!!!!!!!! I was BEYOND shocked!!! with all the highs ive been having I thought it would be in the 7s!! but bh!!! just keep trying and davening that Hashem will take care of the rest! its so nice that you have been giving Chizuk to newly diagnosed families!! it makes me think that maybe there is a reason why we all go through things… so that you will be able to help people at their time of need because you have been there and come out stronger!!! I know ive gained a lot from this group where we all know what the other is feeling!!
jewishfeminist- wow that’s sooo sad!!! I agree with you that it was a Horrible thing for the shadchan to say!! I BH married an EXCEPTIONAL boy!! diabetes is NOT a flaw!!!! my husband says that he sees it builds character and shows responsibility! im ashamed that someone would think its a negative!! I hope your friend continues on her path with courage and pride in all her hard work!!!!
Thanks dx3 for bumping us up… all is good here. I am BH good. I’m actually expecting in October IyH. It’s very hard on the blood sugars at this point, even though I know I am doing all I can and doing all the right things, the hormones are messing everything up!! I am very insulin resistant in the mornings and no matter what I do after breakfast I am always high!! I give insulin first thing in the morning and wait an HOUR before eating and it doesn’t help ;( my doctor said its not my fault and I should just continue to work as hard as I am but its an icky feeling to be in such good control (my last a1c before pregnancy was 5.8!!!!) and now to just “lose” it is hard to deal with. but BH its for a good reason 😉
hi everyone! Just wanetd to stop in and let everyone know i am engaged 😉 Mazel tov! we should share somchos!
My Chosson is totally fine with my D and looks forward to learning all about it!!
Mazel Tov i am engaged:)
i got a call this week to see if im going to the upcoming FWD shabbaton.. im not…. is anyone here?
lol allsgr8 thanks 😉 actually it was very nice, my mother wrote me a beautiful card and gave me a bracelet and my sister (who is like a mother to me and was/is very involved in my D) gave me a necklace (also with a card)both to symbolize that i am stronger than the D and i could conquer anything. i know it sounds silly to get presents for my D but it means a lot to me and i know that every time i wear the jewelry i think i can overcome anything.
Tomorrow is my 10 year “anniversary” of diagnosis. 10 years is a very long time! im very “sentimental” and “emotional” about it!!!
i use Duncan hines sometimes too when i am in a rush…. i use any brownie recipe when i dont use the mix…. any choc recipe is great!
oomis- how interesting to use vienese crunch… its prob YUMMMMM!!! maybe ill try that the next time instead of cookies!!!! thanks!!!
this is what i do and its always a big hit….
make ur favorite choc cake recipe. make it in a 9×13 inch baking pan. let it cool completely. cut into pieces but not so small
open a package of instant choc pudding pour in 1 cup milk (or non dairy creamer if u wanna keep it pareve… but use like 3/4 cup of the creamer cuz i find its thicker than milk…..) whip it till firm with mixer.
whip up whip cream (or use prewhiped cream)
now in the trifle bowl…start with the whip cream put thin layer on bottom of bowl. put choc cake on top of that. put choc pudding on top of the cake. take choc sandwhic cookies. open them up and take out cream and then put cookie part on top of the pudding. then cover that with whip cream. and start over again.. cake… pudding… cookies whip cream.
you should pinish with whip cream on top. (i usually do 2 layers….) on top of teh whip cream on top take choc cookies and crumble on top for a nice looking finish.
refrigerate before serving. (it tastes yum cold!)
same prob here!!! i go low right after i exercise and then like 6 hours later (which is usually at night so its REALLY ANNOYING!!!!)
lol metoo im also sooooooooooooooo bad at changing my lancets….. i shld do it more often!!!!!! i just always forget!!! dont tell my endo 😉
i agree with you reb on ur thoughts abtthe a1c.. i know i worked very hard to get it in the 6s and i find it easier to keep it like that (even though i thought i would be much higher this last time…) i wonder why that is though…. like its the same amout of work and control so why is it easier now??? hmmmm i guess one of the mysteries of D =)
(btw its so nice to have this thread up and running again!!! i missed all the support and encouragment from all you guys!!
wow Reb thats NOTHING!! how do you manage on such a small basal?!?!? mine is like double that!!! sounds like youre working so hard!!!! im sure your a1c will be fantastic!!! keep me posted!!
thanks everyone for ur good wishes 😉 i DO NOT know how that happened but NOT COMPLAINING lol!!!
alls- SO cute abt ur husband! my mother doesnt even know how to change my cartridge!!!!! the only things she knows how to do is test my blood and use the glucogon (BH we have never had to use it just i taught her just in case…. c”v)
reb- when you say you have lows… is it in any pattern? or bec of over bolusing? or maybe too high a basal? so weird that it happens one week and not others…. im happy to hear youre doing well!!
hoow are you princess?????? how are your numbers???? we havent heard any of your writings lately.. any new words of wisdom/support to share?
and dx3???? you there??? havent heard from you in a while!!!hope all is ok!!!
so i just got back from my doc… a1c is 6.5!!!!!!!!!!!!!!!!! i am SHOCKED!!!!!!! i thought it would b in the 8s!!!!!! i have no idea how that happened but bh!!!! i m so excited!!!!
mazel tov sweeet!!!!!!!!!!!!!!! so excited for you!!!! you shld build a bayis neeman!!! have us in mind!!!
im going to the doc tomorrow!!! HEEELP!!! ive been having SUCH A HARD time lately!! i dont know whats wrong with me!!! my a1c is gonna be high!!! im soooo nervous!!! i used to be so tightly controled and for some reason everything is upside down!! im doing everything the same!! is it possible for ones body to just “not care” and do whatever it wants???? thats what i feel like!!! HELP!!!
lol allsgr8 thats true i get so annoyed with everything!!!
i was looking on a website for a cute tshirt for a friend for her birthday and i found a ton of ADORABLE diabetes tshirts!!! i decided im buying myself one! (theyre not for outside of course…) one said “type 1…the real diabetes”. one said “never underestimate a diabeteic” “i make diabetes look good” etc.. some were soooo cute!!! i thought id share.. i think its funny!!!
i’m so frustrated!!! i spent a really long time today trying to explain to someone (who i considered a friend…) that my type of Diabetes is TOTALLY different than type 2 and that it doesn’t matter if i lose weight it WONT GO AWAY!!!! i am so annoyed!!!! they did NOT get it!!! i really find that upseting cuz i know i did nothing wrong that i got D and it just happens because Hashem wants that but when people think it has to do with me and eating etc its jst upsetting!!!! ok i feel better now that i got that out of my system!! thanks for “listening” everyone!!!
hi reb! welcome back!!! i know the feeling i am sorry you feel this way!!!! did you discuss with your doc how u feel? do they have any suggestions how to lower it? do you see any patterns in the high numbers? it really helps me to write all the numbers down at the end of the day… that way at the end of the week i study it and see what times im drifting up and then i figure out why and try to fix it… i know not so practical time wise but it helped me…..
rosh- in school, i used the principals office whenever i needed it. (my school was AMAZING AMAZING beyond words with whatever i needed!! i give them so much credit!) in the beginning my mother would come to help me with injections but i got very independant with it very quickly so i just ended up doing it myself after a month or so. i BH adjusted quickly for some reason. your daughter wldnt wanna do it herself? i know it sounds weird but i know for myself i was happier with that. but its a personality thing…. its good you have someone there to help her out!
princess- i dont see why the omnipod would be different than a regular canula. have you ever seen how small it is? its really much smaller than your prob picturing. even people that know its there cant find it. it just sticks on my skin with the same adhesive as other infusion sets with this little “shell” on it that keeps the insulin. the shell is as long as my thumb and as thick as the nail on my thumb (lol a lot of finger comparisions i guess 😉 and it ‘flattens’ under my tights/skirt so its really hard to see.
hey rosh!! Welcome!!
i was 11 when i was diagnosed… around the same time. i know its a lot to digest a lot to handle… but the technology is AMAZING and although its hard its a lot easier than it was 20 or 30 years ago… even in the 10 years that ive had D as we like to call it, so much has advanced!!! i would suggest going straight on a pump.. its really much easier than shots, i did that for a while in the beginning and im in much better control now that i have a pump…. there are a lot to choose from that could fot your daughters needs… im on the omnipod and i LOVE it bec its wireless which helps me keep ot hidden, but there are others that like the medtronic the best while some like the animas….do research on all… and feel free to ask us questions 😉
idk metooo 😉 i just made that for myself! like i said it’s prob not necessary and i could ttly use it i just dont! lol
i don’t use my pump on shabbos. i keep it on ofcourse, meaning the basals are all going, but i bolus with a syringe. of course if i need to use it i dont hesitate and will use it no prob but i try to avoid it. but thats just my own thing it’s prob not the right thing lol
“Hashem is reminding us of the wisdom of creation. How often do you think about why trees lose their leaves in the fall?”
wow i never thought of that before!! thanks so much for pointing that out!!! amazing!
i have the omnipod and i am a BIGGGGGG fan of it! it solves the jumper dress prob bec you never have to touch that to program a bolus etc its all on a seperate thing thats the size and shape of a blackberry. the actual pump is small and you cant see it through clothes (at least on me 😉 and it also has a HUGE food library that i find very helpful! just today i wanted to eat an orange and i couldnt remember the carbs for it so i looked it up and was able to bolus no prob! have you ever looked into it? i love that it has no wires! for a girl that young i think it could have many benefits! but the other pumps are also great too! its great the technology theres out there today!!
whatever you chose i hope it will be a good tool to help you and your daughter with diabetes! and know that we are all here to help (even if we dont post for days and days at a time!!!)
i couldnt agree more! princess has helped me through a lot! (for proof look at the Diabetes Support Group thread! AMAZING!!!!)
HELP!! my numbers have been soooooo crazy lately!!!! i wake up high no matter how low i was when i went to bed. it just spikes all the time and i cant get it down no matter how much insulin i give!!!! i changed my basal rates already….. is it just yomtov? like once i get back to normal schedule and normal eating habits it will go down? im terrified what thid is doing to my A1C!!!
SHHHH dont say the “W” word!!!! i’m enjoying this time off way too much!!!!! 😉
i make the 8th grade yearbook every year for the school i work in. you have no idea how expensive the printing and binding is per child! the school makes nothing off of it…. and thats with me doing it without charging the school…. i always feel bad telling parents the ad prices cuz it is costly but we make it as low as possible!!!
i said it for a sick child but she was still niftar. when i told my mother i feel like i said it for nothing she said “who knows how long she was supposed to live? maybe your tefilos prolonged her life even just a bit?” so i feel like every tefila helps even if we dont get the END result we want
i love both of those gumball!!
but my favorite is DKNY fresh blossom… its soft and not overbearing but smells great!
oysh d!!! i know what you mean… during my summer vaca i was also not in the normal control!!! Diabetes is a very scheduled thing (at least for me…) my body likes knowing whats happening.. coffee at 10 lunch at 130 snack at 430 etc… so any changes throws everything off! yomtov will be hard!!!!!!!!!!!!1
i did it too!! easier than tisha baav but still was a bit hard! i stayed in low 200s all day except at the end i dropped to 90 which isnt low but the drop affected me… i was just soooo thirsty from being ‘high’ but i refused to have to break it so i was happy with the high. plus i had the normal fasting issues like headache etc bec im not used to fasting it was harder. but BH i was able to do it!!!!!!
we miss you dx3 but good luck with school!!!!!!!
thanks princess for posting the info!! im really nervous!!!! hope you guys all do well im sure we all will!! and
lets just keep reminding ourself if CHAS VISHALOM we need to break the fast that this is what Hashem wants and He does not want us to harm ourselves in any way! i know its very hard to eat Yom Kippur… ive done it before and i cld say i found it physically painful.. but Hashem gave us D and He knows we can handle it!!!
Gmar Chasima Tova everyone!!!
(and im on board with the sign in sheet too;) its nice to have some pop ins here!!!)
i know princess- this thread has been TOO QUIET lately!!!!! thanks for reviving it!!
i did not even try to fast! i am SO SO nervous for Yom Kippur!!! i DO NOT want to break it!!! does anyone know the halacha for eating on YK? the 1 oz every nine minutes thing? opefully we wont need it but just in case does anyone wanna review it for us all?
welcom back allsgr8!!! i was thinking abt you!!! we missed you!!
feif- he did give me vicodin but the pharmacist gave tylonol with codine so when we called to tell him that he said its the same thing. its helping a bit more now, plus taking advil with it (as per pharmacists instructions i would never do it without asking!!!)
thanks all for your wishes!
thanks everyone!!! especially cofee addict, thanks for the jokes! they made me smile (even though it hurt to do that but it was worth it!)
YAY! finally someone with their head on straight!!! nicely said “taking a break”!!!
sweet- honestly.. i DONT feel bad for myself… most of the time i am proud of myself if im being honest…. this is a challenge that Hashem gave me and BH with His help i overcopme it on a daily basis! im not saying there are not days when i had enough or that it gets hard but for the most part i am grateful that from all the diseases that are unfortunatly in the world i got one that i could control and lead a normal life with. thats just how i feel….
dx3- i was thinking about you!!! wondering where you were we didnt hear from you in a while!!! im so glad ur numbers are doing well!!! u are so lucky that you are losing weight!!! im just happy right now that i am staying the same!! you should be proud!!!! welcome back 😉
princess- thats so sad! but cute too in a way!!!! did you tell him or his parents that you have it to? it might make them feel more at ease!!
its crazy how so many kids are diagnosed with D. over the summer i heard of 2 girls both very young that were diagnosed…. it makes me so sad because why do they have to go through this?? yes i know i did (and still am doing…) it but it makes me so sad that other kids have to do it all.. i guess cuz i know what its like…. im sure all you guys agree…. one is exactly the age i was when diagnosed so i feel connected i guess… we all share this “bond” in a way… idk this prob makes no sense lol 😉
i think that this applies to every person…. no one should assume anything or judge a person cuz you have no idea whats really going on… but this is especially true to all teachers!!!!
wow what a story! hatzlacha with everything!!!
what wedding are you guys talking about???
chocolate causes heartburn?! i never knew that!
i test the exact same way on shabbos! i try to remember to use my left hand but i forget but i was told that its ok bec its for my health. but i dont remove the strip bec then it turns the machine off but bythe time i need to use the next time its already off by itself so removing the strip doesnt affect it.
yoel- i usually do have a tester with me but i had switched bags and i forgot to put it in… but dint worry… its there now lol!!! thanks 😉 you like one touch better than freestyle? do you really think i should tell my doctor? i was planning on mentioning it when i go in a month, is there a neeed to tell her before?
wow Yoel sounds like quite a story!!! its so cool that your dog is sensitive to BS…. its amazing!!!! i agree with everyone about yom kippur…. the rabbis room suggestion seems like a smart option for your situation!! and btw welcome to this thread 😉 happy to have another member!!
today i had a bit of an “incident”….. i was swimming, (after 30 minutes cardio exercsie….) and i got SOOOOOO dizzy and shaky it was so scary. so i got out of the pool, got dresse, got into my car and ate a pack of winkies, waited a few minutes and then i drove home (slowly…) when i got home i tested and it was 53!! thats AFTER the winkies.. could you imagine what it was when i was in the pool????? it was prob sooooo low!!! i was so afraid!!! the rest of the night i felt HORRIBLE!! my head was pounding, i couldnt sit straight i was dizzy and nauseous… i layed down for a half hour and felt better…. i think it wasnt just a normal low and was having some reations to oit dropping so low so quickly then going back up.. idk it was bad!!! but BH i feel better now!!! idk what happened because i always do that much exercise and i ate before hand etc…. bh it was just scary and nothing more i guess right????
does anyone here have problems with mosquitoe bites? i get a TON! i was outside for 5 minutes and i got at least 10 botes. my family and i were discussing if we think the D is a factor in it like if they can sense the sugar in my blood or something… but my BS was 91… not even high so idk. any opinions on this?
i was walking down a very busy new york street and there was a hunched over old man trying to cross it… i saw a car pull over, a frum man get out, run accross the street and helped this man cross. it took a while but this man had sooo much patience. he smiled at the man and talked with him while crossing him. it was obvious this man went out of his way to help the old man and i was SOOO blown away!!! it happened months ago but its stuck with me!!! what a mitzva!!!